message from my dr about my long term covid so sad now

Hi. I know how Drs can make us feel. We think of our Dr was having all the answers bc sometimes they do. I heard from my Dr, as I sat in his office c/o abt debilitating exhaustion "It's only going to get worse. There's nothing that can be done. Nothing will get better on it's own " He then picked up his laptop and left the room. I was devastated. I felt hopelessness+ despair. Then a stranger handed me a country music style CD she recorded. She encountered me just momentarily while shopping. The first song began "Did the Dr tell you there is nothing he can do? Did he leave you hopeless+ confused? It goes on to say "It's not over til God says it's over."
When I heard those words, it put my Dr in his rightful place in the larger picture.
Then I embarked on reading/watching everything being disseminated on Long COVID from reasonable sources on the Internet. Something inside of me didn't believe my Dr was the final answer. He was not. I've made incremental improvements towards restoration of health and the cumulative results are solid from non- professional care.
Many of us redirected our focus from the medical establishment to alternative sources. And for many, it has been working out.
Discouragement is a huge disability itself. I say that from experience. It can be a greater burden than anything physical. I'm here to tell you that there is TRUE HOPE. You can grab hold of that and let it be real for you.
There are many, many non-medical interventions you can do that make a difference. One example: Epson salt baths. Another: vague nerve stimulation to your ear receptors. Another, certain herbal teas. Another: otc supplements. Another, Benadryl.
I could go on. I could be specific. But right now I want you to know the list of what is available to address symptomatic relief and perhaps even anti-viral status is abundant.
The current situation of recovery outside of a formal Long COVID clinic is self help. It's workable bc of the Internet. It's available for you. It might be overwhelming at this moment, but just start by throwing off hopelessness and finding some hope+ faith. Then start small. Reject everything that tells you that there's nothing that can be done. Try to get some rest + give yourself moments of peace. Then you'll be ready to sort out your priorities for recovery + begin to learn + test them.
Praying for you.

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The HRV is used by pro athletes to improve performance you can use it you monitor and consistently improve over time. It takes 2 weeks to understand your base line the. You can begin to use it.

The whoop recovery status red yellow and green will give you a heads up on the balance of your autonomic nervous system. Keep track of your activity tolerance and increase your thresholds.

When you balance your autonomic nervous system you will find a way.

I felt a great sense of peace and understanding after watching limitless on Disney plus. Episode 6 is a validating episode of our experience they us an aging suite developed by MTI to simulate what we are experiencing. We all literally aged over night as a result of our infection. We feel ancient inside and the outsides and logic doesn’t add up. Be well and good luck. I posted more information inside this chat if your looking for more information or just ask me and if I know I’ll share with you what I can.

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I am a little over one month post positive Covid test. I had 2 pretty good days this past week in which I almost felt like a normal human being. The thing is, after a good day, the next day is not so good. It has been back and forth, mostly back. Has anyone else experienced this? I have mild nausea sometimes in the mornings and still have that woozy lightheaded feeling on and off. The feeling is so weird that it is hard to explain. My doc now has me monitoring my blood pressure each day. My appetite is good sometimes and sometimes not so good, but generally I feel better after I have eaten. I am in the process of starting at the Long Covid Clinic at Scripps here in San Diego. Hopefully they can give me some perspective on all this. Of course I am so bummed out that I just don't have the energy or ability to resume my former life. The worst part is that no one in the media is really talking about all the suffering that probably millions of people are going through. Everyone just wants to believe that this is over.

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Just know you’re not alone.. I know that doesn’t help, trust me I’m 35 with no prior illness and now I’m getting seen by Drs and they keep trying to put me on different medications, which some are just to ease all of my pain and I get it, but now because I’ve been sick with so many different symptoms that came on since March 2020, all from long covid, I can’t work and my job ( I’m a Government Employee) is fighting me aka not covering my medical or paying me so thank God for my Husband or I wouldn’t have any money to go to the Doctors because apparently in America being an American Citizen I don’t qualify for any benefits because I’m Employed!! , so depression has now hit and they want me on antidepressants on top of the other 19 pills I take for my long covid issues, which I just ultimately want to be my old self- go to work, not be tired, be able to breathe, walk, run, etc. It just seems like that’s not going to happen anytime soon. Most Doctors are just as confused as we are, but some are trying to help us, and I keep thinking they will it’s just gonna take some time since this illness is so new, hang in there and stay strong, many doctors I will say are just focusing on managing our symptoms for now until they find a “cure” or something that works 🙏🏻🤗

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