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I have MGUS

Blood Cancers & Disorders | Last Active: Apr 14, 2023 | Replies (56)

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@roseyd

I had extensive back surgery in 9/21 during Covid. After my surgery I was sent to City of Hope, Medical Ongologist. I have been seeing him every 3 months for labs. I was told it was because some of my blood work was off after surgery. I assumed it was because I had 2 transfusions during surgery. I recently was able to check my documents on line. I knew my iron was low as I was put on meds. I saw a diagnosis of Monoclonal Gamopathy which I was not aware of. I have read a lot of comments and relate to them. I was also diagnosed with CKD 3 which was new. I have known of this diagnosis and am seeing a nephrologist. I now have a lot of concerns-my dad died of lymphoma. From what I’ve learned from this site I should ask for a baseline BMB at the least. I see my GP next week and I will address these concerns with her. I appreciate what I have learned already in this group and will continue to check in.

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Replies to "I had extensive back surgery in 9/21 during Covid. After my surgery I was sent to..."

Welcome @roseyd. You will connect with many others here, including @gingerw who has history with MGUS and kidney disease. I invite you to also join the many members and discussions in the
Kidney & Bladder support group here: https://connect.mayoclinic.org/group/kidney-conditions/

Rosey, have you talked to the oncologist about the potential diagnosis of monoclonal gammopathy of undetermined significance (MGUS)?

Wow I am so sorry that no medical professional had the MGUS discussion with you. That is inexcusable.
For me, having a HEM/ONC doc whom I can trust is essential. I hope you have found one and that he or she is a good communicator. Personally, I have no patience hearing how the watch is made, I just want to know what time it is. I don’t want to feel like I have to research every aspect of this disease and treatment thereof. I want to be able to trust my medical professionals.
The amount of knowledge floating around among the posts is awesome!
Patty