newly diagnosed complex migraine with aura post-covid

I had covid 12/17/22 until about 12/28/22 when most of my symptoms finally went away (still had coughing, tired, etc). On 12/30 I was working and suddenly had memory loss, and didn't know if I and my family had covid. It happened when I was on a work call and suddenly felt like something wasn't right in my thinking, because suddenly things "scattered" in my mind and didn't make sense. Scariest thing I ever experienced. To make a long story short, I went to the emergency room, and immediately upon arriving (about 45 min after the brief memory loss) I began having an aura. I've been diagnosed with Complex Migraines (and Vestibular Disorder) before and have had several auras, so as soon as it came on (I wasn't even out of the ambulance yet) I immediately suspected that the brief sudden memory loss and now the aura, was an impending migraine. SURE ENOUGH, I HAD 6 AURA MIGRAINES while in the hospital, through a total of about 6 hours. I had also had one the day prior but didn't think much about it. Again, 2 days after hospital trip, I had another. Today, I had another. That's 9 Auras in 9 days. Interestingly, these are NOT being followed by migraine pain. Lastly, my anxiety has gone up significantly which I've not experienced in years, and bloodwork from the emergency room that night revealed very high platelet count (687) which scared the heck out of me. Again, the Complex Migraine I was diagnosed with at the hospital, was WITHIN A FEW DAYS of my last major covid symptoms. I am hoping the high platelet (and high white blood cells) count is just due to the covid my body had just gotten through. But I'll know more in a few days as I've scheduled a Hematologist appt.

I DEFINITELY believe based on other's stories here that my uptick in auras is a result of covid. I researched a bit and also saw people with general migraines (mine are Complex due to different symptoms with Vestibular Disorder) are suffering more now with more migraines after having covid.

Btw, I'm unvaxxed due to Vestibular Disorder, which covid has been known to provoke, so I was fearful in vaccinating because I already have Vestibular Disorder.

Yes, I wanted to tell you to get on the Nurtec.com site and they will give you a code for FREE Nurtec. I’ve had 4 of the 8 packs refilled. But I’m sad because after week 3, Nurtec stopped working. Then I asked my doctor for Qulipta. She had Qulipta samples. I had, had a post covid 3 week long daily migraine at that point. I had to shut myself in my bathroom or bedroom for the 3 weeks and the Qulipta worked for a week and then I became severely allergic to it. But it gave me a short break from the migraines. I’m waiting to get into a neurologist and a pain clinic. Both appts are many months away. My pcp has given me other old fashion migraine meds mixed with caffeine that do nothing. But I had long covid the first time for 4 months then snap it went 90% away. Then I went back to my dental hygiene job and a sick patient came in and he gave me covid and now I have long haul for 9 months with a lot more symptoms. Just touching my head on a pillow and any changes in light balance etc etc hurts so bad. It’s 6:14 am and I can’t sleep when my head is this bad. I can’t have the tv on. And can be on the phone completely dimmed for very short times. Please share any meds anyone else has found helpful!!!🙏🏼 Haley

I am post covid since September 2021 and the only thing that works for my migraines have been the combo of qulipta daily with nurtec. This sucks, because after awhile it stops working and you have to suffer for a while then start it back up the same combo. It's like your body gets use to it. Good luck and let me know if you find anything better.

I had covid 12/17/22 until about 12/28/22 when most of my symptoms finally went away (still had coughing, tired, etc). On 12/30 I was working and suddenly had memory loss, and didn't know if I and my family had covid. It happened when I was on a work call and suddenly felt like something wasn't right in my thinking, because suddenly things "scattered" in my mind and didn't make sense. Scariest thing I ever experienced. To make a long story short, I went to the emergency room, and immediately upon arriving (about 45 min after the brief memory loss) I began having an aura. I've been diagnosed with Complex Migraines (and Vestibular Disorder) before and have had several auras, so as soon as it came on (I wasn't even out of the ambulance yet) I immediately suspected that the brief sudden memory loss and now the aura, was an impending migraine. SURE ENOUGH, I HAD 6 AURA MIGRAINES while in the hospital, through a total of about 6 hours. I had also had one the day prior but didn't think much about it. Again, 2 days after hospital trip, I had another. Today, I had another. That's 9 Auras in 9 days. Interestingly, these are NOT being followed by migraine pain. Lastly, my anxiety has gone up significantly which I've not experienced in years, and bloodwork from the emergency room that night revealed very high platelet count (687) which scared the heck out of me. Again, the Complex Migraine I was diagnosed with at the hospital, was WITHIN A FEW DAYS of my last major covid symptoms. I am hoping the high platelet (and high white blood cells) count is just due to the covid my body had just gotten through. But I'll know more in a few days as I've scheduled a Hematologist appt.

I DEFINITELY believe based on other's stories here that my uptick in auras is a result of covid. I researched a bit and also saw people with general migraines (mine are Complex due to different symptoms with Vestibular Disorder) are suffering more now with more migraines after having covid.

Btw, I'm unvaxxed due to Vestibular Disorder, which covid has been known to provoke, so I was fearful in vaccinating because I already have Vestibular Disorder.