What can I expect with Antiphospholipid Syndrome (APS)?

I don’t know what the problem with Eliquis is ? I was just informed that someone else didn’t agree with Eliquis and said it was not an anticoagulant? I’ve been on Eliquis since last June due to a blood clot on my spleen. I do not go back to my doctor until May of 2023 , that’s a long wait to find out really if I should be on Eliquis or another blood thinner? With that said, I’m thinking on moving my appointment up after I get through the holidays.

Thank you for responding! Please let me know if your Doctor has any more info. I have not had a Doctor so far who has known very much about our condition. Since being diagnosed 32 years ago, I have been hoping to find out what might have caused this scary condition.

Thanks for the recommendations! At this point, my doctor has me on one baby aspirin daily.

Hello I don’t understand why your doctors is treating you with aspirin and Eliquis .My advice to see a hematologist.It’s quite frustrating to be diagnosed with an autoimmune disease but I’m so glad I joined this community who understand each other.I do believe Eliquis is not the medication for APS.Want to do more research on APS .Amazon has books .Good luck.

Currently my hematologist has me on baby aspirin and prescribed the Eloquis for plane rides and any travel over 2 hours long. I was surprised when I saw the fine print warning during the Eloquis commercial. I have my annual appointment with him next month and will question his choice of this drug.

Thanks! My APS doctor is a hematologist/oncologist.

Ive been told by many MD’s that any autoimmune disorder should be managed by a Rheumatologist, and additionally a Pulmonologist for anti phospholipid syndrome.
I was put on Prednisone and Myfortis with good results!
I’m now off the inhaled steroids and going off Prednisone Jan1.
I recommend a group at a University Hospital.

My 67 yr old, healthy husband has been hospitalized 5 times since Aug 31. He had been experiencing extreme fatigue. A MRI uncovered multiple acute & sub-acute strokes, PE's, a DVT and many clots in his arms. After going down multiple rabbit holes, being on Eliquis first - second stroke - changed to coumadin - third stroke - coumadin + aspirin - 4th stroke - most recently tiny stroke due to HBP. He was put on Lovenox in November and it seems to be helping keep the clots at bay. His extreme fatigue is still present. Anyone else have this experience of extreme fatigue?

Hello @kaford80 and welcome to Mayo Clinic Connect. What a shock this all must've come as given your husband being otherwise healthy. Please consider joining members in the stroke discussion below:

- What to do?? Life after Stroke: https://connect.mayoclinic.org/discussion/what-to-do-1/

I have several autoimmune diseases over many years, beginning in 1972. I was diagnosed with APS a year ago so just keep adding to the list! I was already taking Pradaxa because of two strokes 5 years ago, so feel I’m protected from clots for now. However, I needed a tooth extracted recently and bled very little, which is concerning but so far docs are telling me not to worry as med levels are fine. Most important is taking the Pradaxa every 12 hours to maintain that medicinal level. Not a problem. Otherwise I am careful on stairs, always use a rail even though I don’t need it and on uneven surfaces… just keep going forward.