Hello. I’m new here and am looking for others who have experienced recurring cholesteatoma.

I had removal, left ear and then ossicular reconstruction (titanium implant) in 2010/2011. I had tubes placed in both in ears in 2015.

I have for the last 18 months had recurrent infections mainly in left ear, tube is still in place in left side but right ear expelled about 12 months ago.

I am awaiting an appt for MRI scan to check for recurrent cholesteatoma and on wait list for the left tube to be removed. I have recently been fitted with hearing aids that I cannot wear due to the infections.

I am totally beside myself with worry that I will have to endure further cholesteatoma surgeries and my medium hearing loss will become even more severe.

Can anyone else share their experiences of recurrence symptoms etc. Due to the titanium implant, I do not expect to have the same symptoms as the first time.

Would be very grateful for any help or advice ?

Many thanks 😊