Stage 3 Kidney Disease and Diet: What can I eat?

From eirrol
What is the general opinion about flourless bread ? I asked my kidney doctor and nutritionist about Ezekiel 5:9 flourless bread . They both think it is ok. It comes frozen and certainly was not appealing to my taste at first but now I have adapted to it. It is supposed to be sprouted grains of several kinds and I really have wondered if any of those are not good for the kidneys.

@pcjaparis I looked this product up on the internet. People should be aware of the magnesium citrate ingredient, which can be detrimental to some health conditions, including CKD. Also, I note the medical review of the product is from an obstetrician/gynecologist with no mention of nutrition education. This, for me, is a big red flag.

Your endocrinolgist and nephrologist would be good sources to ask the questions about using SuperBeets in your own individual case, as they have the best knowledge of your situation. What may look good on the surface may not be a good fit for you. In my experience, fresh food is always best when possible.
Ginger

@eirrol Seeing that your doctor and renal nutritionist have okayed this, I personally would proceed with caution. We have previously posted links to diet recommendations from National Kidney Association and American Kidney Foundation, here. Take a look to see what they say.

While each person is different, it is still an agreed premise to watch your phosphorous, calcium, sugar, salt, and potassium intakes in the foods you eat. Have you checked into the nutritional values of these grains, yet?
Ginger

@eirrol Seeing that your doctor and renal nutritionist have okayed this, I personally would proceed with caution. We have previously posted links to diet recommendations from National Kidney Association and American Kidney Foundation, here. Take a look to see what they say.

While each person is different, it is still an agreed premise to watch your phosphorous, calcium, sugar, salt, and potassium intakes in the foods you eat. Have you checked into the nutritional values of these grains, yet?
Ginger

@gingerw, hello.

Am having a lot of difficulty finding certain information. I know this is the Kidney and Bladder thread and I do have CKD but I also have gastroparesis and am experiencing many roadblocks to getting detailed information about the latter.

CKD patients need to be careful about grains and so do gastroparesis patients. Everything I've read and been told about gastroparesis says to limit fiber, avoid legumes (except refried beans, of all things, and peanut butter!) as well as nuts and seeds.

Unfortunately, the GI specialists where I live and the nutritionists don't seem to know enough to answer my questions.

1. Most if not all commercial/prepared mustard is made by soaking and grinding mustard seeds into paste then adding vinegar, salt, perhaps some oil and sugar. Since the seeds are broken down into a smooth paste and product labels indicate zero fiber, does anybody know if is it ok for a GP person to use 1/2 tbsp mustard once in awhile?

2. I also have a question about celery seeds, which are extremely tiny. I fail to see how 6 to 8 celery seeds occasionally sprinkled into egg salad or potato salad or soup could possibly contribute to bezoar formation or exacerbate diverticulosis, especially since five or six times that amount (or 1/2 tsp) contains only 0.1 grams of fiber. So, can someone tell me if consuming a few celery seeds now and then are safe?

I did check several sources and Crystal Saltrelli is the only person I found who
indicated a GP patient can try such things sparingly and see if they're tolerated.

As you know, renal diets are in conflict with diabetic diets and with gastroparesis diets, therefore I have to do much compromising on a daily basis and am spending an inordinate amount of time and energy calculating nutritional values and appropriate amounts of limited foods. This is far more challenging than if was for me to create my own ovo-vegetarian renal diet which also fits with a very modified vegetarian (meat-free, low-or-no-dairy) diabetes diet.

Nuts and seeds are ok for vegetarians with diabetes but must be eaten sparingly on a renal diet due to mineral content and supposedly should be avoided on a gastroparesis diet.

Meat substitutes and protein veggies are ok on a vegetarian diet and even on a diabetic diet but should be limited on a gastroparesis diet.

Very frustrating!

Although I need to avoid dairy products, I can't get enough nutrition without supplementing with Boost or Ensure daily, which contain milk!

If you or anyone else knows where I can get real answers to real questions besides the burping (pun intended) of "avoid this" or "limit that" gastro diet, please let me know.

Thanks!

@gingerw, hello.

Am having a lot of difficulty finding certain information. I know this is the Kidney and Bladder thread and I do have CKD but I also have gastroparesis and am experiencing many roadblocks to getting detailed information about the latter.

CKD patients need to be careful about grains and so do gastroparesis patients. Everything I've read and been told about gastroparesis says to limit fiber, avoid legumes (except refried beans, of all things, and peanut butter!) as well as nuts and seeds.

Unfortunately, the GI specialists where I live and the nutritionists don't seem to know enough to answer my questions.

1. Most if not all commercial/prepared mustard is made by soaking and grinding mustard seeds into paste then adding vinegar, salt, perhaps some oil and sugar. Since the seeds are broken down into a smooth paste and product labels indicate zero fiber, does anybody know if is it ok for a GP person to use 1/2 tbsp mustard once in awhile?

2. I also have a question about celery seeds, which are extremely tiny. I fail to see how 6 to 8 celery seeds occasionally sprinkled into egg salad or potato salad or soup could possibly contribute to bezoar formation or exacerbate diverticulosis, especially since five or six times that amount (or 1/2 tsp) contains only 0.1 grams of fiber. So, can someone tell me if consuming a few celery seeds now and then are safe?

I did check several sources and Crystal Saltrelli is the only person I found who
indicated a GP patient can try such things sparingly and see if they're tolerated.

As you know, renal diets are in conflict with diabetic diets and with gastroparesis diets, therefore I have to do much compromising on a daily basis and am spending an inordinate amount of time and energy calculating nutritional values and appropriate amounts of limited foods. This is far more challenging than if was for me to create my own ovo-vegetarian renal diet which also fits with a very modified vegetarian (meat-free, low-or-no-dairy) diabetes diet.

Nuts and seeds are ok for vegetarians with diabetes but must be eaten sparingly on a renal diet due to mineral content and supposedly should be avoided on a gastroparesis diet.

Meat substitutes and protein veggies are ok on a vegetarian diet and even on a diabetic diet but should be limited on a gastroparesis diet.

Very frustrating!

Although I need to avoid dairy products, I can't get enough nutrition without supplementing with Boost or Ensure daily, which contain milk!

If you or anyone else knows where I can get real answers to real questions besides the burping (pun intended) of "avoid this" or "limit that" gastro diet, please let me know.

Thanks!

@kamama94 greetings in the New Year. I’m responding to your post to @gingerw regarding nutrition for gastroparesis. We’ve discussed nutrition for diabetes and CKD in the past. Your cookbook / recipes for those conditions have been wonderful. You are a good cook and are so thorough and thoughtful. Now you have to concern yourself with gastroparesis. I have a history of that too. I was told that it is a complication of diabetes and a type of autonomic neuropathy. I also was told to go with low fiber because of it. I found out it is very challenging to feed the body when there are multiple diseases at play and the various recommendations for each are contradictory. In my case it was in the order of diabetes, gastroparesis, then CKD. It doesn’t really matter because the dilemma is the same. I want to remind you that your CKD was pretty serious to the point of dialysis and you have improved so much. My gastroparesis has improved that I now refer to it as a history. It only flares up occasionally. Improvement is possible. Last summer I had a trip to ER and ended up with a 4th diagnosis, Diverticulitis! The dietary recommendation for that is high fiber (but not nuts & seeds). It is pretty much the exact opposite of what is necessary for gastroparesis! My primary doc said “This will be touch and go for awhile”. I asked him what he meant and he said it will take time with ups and downs to figure out what works for me. Don’t change everything for diverticulitis to the detriment of the gastroparesis. Don’t do anything drastic. Make small changes to find out what works. I don’t know if this is helpful or not but please keep trying. You’ve done exceptionally well in the past. My hope and prayer for you is that you can learn to deal with this newer challenge. Blessings to you in the New Year.

Both neph and primary are pleased and say they expect further improvement.
When I first noticed my GFR was dropping several years ago I knew to lower K, P and Na.
After the dramatic drop last Feb post-flu in Dec-Jan and before I even consulted with the neph or a dietitian, I started a renal diet similar to that of my former CKD patients.
Then in May my neph suggested that a vegetarian diet MIGHT help. It was an easy transition since I already was limiting meat. We all believe it's at least partly responsible for improved renal function since a renal vegetarian diet doesn't stress the kidneys as much as a regular diet does.
Dietitian consult helped some but you'd be surprised how many professionals understand a vegetarian diet and know about a renal diet but not both combined into one. Vegetarian diets rely heavily on legumes, for instance, and tomatoes - no-nos for a low K & low P diet.
So I've spent a great deal of time reading labels, contacting food manufacturers to learn mineral content of their products (phosphorus is not required to be listed,) and going online to various websites to find nutrient values. I wish I could post links as two in particular are approved by my neph but as a new member I'm not allowed to post URLs.
BTW, I have only one functioning kidney, the left one stopped working years ago and finally atrophied but no one knew because I was asymptomatic, therefore no reason to suspect a problem requiring imaging. Last May neph, primary and I were all three surprised to see a tiny bean that used to be a kidney.