1. < Neuropathy

Intractable Pain (IP) Doctors

Posted by cwallen9 @cwallen9, Jul 21, 2019

I just found a guidebook by Dr. Forest Tennant that talks about "Intractable Pain (IP)". Instead of chronic pain, he deals with patients that have unbearable pain every day. He treats it differently than chronic pain. Basically, he believes that opioids are necessary for people with IP. He also has some good advice for dealing with it. Does anyone know where one can find doctors that are IP doctors? I live in central Pennsylvania and there are none around us. I have been dealing with severe, unbearable neurapathy pain for a year, and none of the usual pain meds help (gabapentin, Elavil, Ultram, etc.). The website is at http://www.foresttennant.com. There is a guide in the "self help" tab. I attached the guide.

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IntractablePainSurvival Dr Tennant (IntractablePainSurvival-Dr-Tennant.pdf)

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kodoshan | @kodoshan | Dec 31, 2022

Thx @johnbishop. Yes, the link you posted is to the press release about the new protocol I mentioned. The cite for the full study is: Moisset X, Lanteri-Minet M, Fontaine D. Neurostimulation methods in the treatment of chronic pain. J Neural Transm (Vienna). 2020 Apr;127(4):673-686. doi: 10.1007/s00702-019-02092-y. Epub 2019 Oct 21. PMID: 31637517.
Your reply notes exactly why, as a ‘newborn’ member, I didn’t post a link last night. Know that most all communities worth their salt have guardrails up about link posting. Sought to give enough info so a search could easily find the news. Plus it bought me more time to educate myself on MC posting guidelines. 😉
The neurostim protocol itself tracks quite closely with several promising neurostim and neuromodulation developments that my lead physiatrist and have been investigating (and due to meet on soon).
Perhaps finally a new avenue of help for me… and many? Fingers crossed!

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John, Volunteer Mentor | @johnbishop | Dec 31, 2022
In reply to @kodoshan "Thx @johnbishop. Yes, the link you posted is to the press release about the new protocol..." + (show)
@kodoshan

Thx @johnbishop. Yes, the link you posted is to the press release about the new protocol I mentioned. The cite for the full study is: Moisset X, Lanteri-Minet M, Fontaine D. Neurostimulation methods in the treatment of chronic pain. J Neural Transm (Vienna). 2020 Apr;127(4):673-686. doi: 10.1007/s00702-019-02092-y. Epub 2019 Oct 21. PMID: 31637517.
Your reply notes exactly why, as a ‘newborn’ member, I didn’t post a link last night. Know that most all communities worth their salt have guardrails up about link posting. Sought to give enough info so a search could easily find the news. Plus it bought me more time to educate myself on MC posting guidelines. 😉
The neurostim protocol itself tracks quite closely with several promising neurostim and neuromodulation developments that my lead physiatrist and have been investigating (and due to meet on soon).
Perhaps finally a new avenue of help for me… and many? Fingers crossed!

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Can you let us know if you find out anything new after your follow up meeting?

REPLY
kodoshan | @kodoshan | Dec 31, 2022

Of course, I’ll be happy to share report back. So we have shared expectations, my team and I have a couple of evaluations/assessments ahead; potentially even a trial implantation. That said, we may not have anything worth sharing until mid-February or March 2023. I can see from what I’m beginning to learn about all of you, I have no doubt that you know in your bones exactly what it takes to endure the pace that gaining ground usually proceeds at. Particularly given the current state of the art in intractable pain management. And yes, that is one of my diagnoses.

May the coming year find all of you productive, creative, happy, stable and even improving!

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