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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)

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@tongannokie

So I have a situation where my body doesn't make platelets. They keep going low and low right now they are 22. AND I have had trouble with blood clots since I was a teenager and have been told I will be in blood thinner all my life. So I have to take xaralto. However, my hematoligist took me off xaralto and 2 days later I have a femoral clot. Any idea?

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Replies to "So I have a situation where my body doesn't make platelets. They keep going low and..."

Hi @tongannokie, You’re not alone in having low platelets. There are a number of members in our forum who also have similar issues. Some have a confirmed diagnosis as to what’s causing the lack of platelets and others are like you, where they’re wondering why and what to do about it.
I think this discussion would be most fitting for you right now so here’s the link to:

“Low Platelets: Diagnosis to be confirmed”…where you’ll meet other members, @tyson1221, @rockitman @renee12345, @hlmcneely who may have suggestions or useful information for you.
https://connect.mayoclinic.org/discussion/low-platelets-1/?pg=4#comment-778606
I just have to ask, knowing your situation, why did your hematologist take you off the Xaralto? Have you had further bloodwork drawn to have an actual diagnosis for your bone marrow failure to produce platelets?

Hi @tongannokie, I moved your message about low platelets and followup to this recent discussion:
- Low Platelets: Diagnosis to be confirmed: https://connect.mayoclinic.org/discussion/low-platelets-1/

I did this so you can read the previous helpful posts and connect easily with members like @rockitman @tyson1221 @loribmt @elenarey77 @kristiann1123 @hlmcneely and others who can share their experiences.