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MGUS with Polycythemia Vera (PV)

Blood Cancers & Disorders | Last Active: May 6, 2023 | Replies (38)
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@kibbykyle

Same here Dr. wants me to start Hydroxyurea and I have the same concerns about side effects. My Platelets are high and Iron is low having Phlobotemy monthly. I'm Interested in hearing from others who are taking this drug.

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Replies to "Same here Dr. wants me to start Hydroxyurea and I have the same concerns about side..."
fishergramma | @fishergramma | Dec 29, 2022

I've taken Hydroxyurea for 2 years now and have not noticed any side effects. My platelets count recently went up and have to increase my dosage. Better than a stroke!

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eileen11108 | @eileen11108 | Dec 29, 2022

I am 78 with ET JAK2, started taking HU 500 mg daily in June 2022. Started with daily headaches, went off it for a few weeks. My platelet count at that time was 498 and I am on a blood thinner for AFib. After a month went back on HU 500 mg every other day….headaches are gone and I feel good. I see hematologist again on January 3. I am really hoping I can stay on every other day regimen. I will update after my appointment.
Happy New Year, Eileen

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