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CLL leukemia: Just diagnosed, what can be done?

Blood Cancers & Disorders | Last Active: Oct 25, 2023 | Replies (187)
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@shirlpat

A needle biopsy was done and I was suspected of having CLL. When a wide neck resection was done they found that I had Mantle Cell B non-Hodgkins Lymphoma and that I did not have CLL. I am currently on a wait and see course.

I have a Brain MRI coming up and a second PET scan to see where it is metastasizing.

Pat5

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Replies to "A needle biopsy was done and I was suspected of having CLL. When a wide neck..."
Lori, Volunteer Mentor | @loribmt | Dec 27, 2022

Hi Pat, my goodness, you’ve been through quite a bit in trying to get a firm diagnosis with your lymphoma. You had the surgery in September that gave you the ultimate diagnosis of Mantle Cell B non-Hodgkin’s Lymphoma. NHL for short. How was the recovery from the surgery?

There are numerous discussions in our forum for Non Hodgkin’s Lymphoma. This link is for the most current. When you comes up the oldest conversions are first so just click on the button under the opening statement to reverse the order from newest to oldest. You’ll meet other members or their family members who have NHL.

https://connect.mayoclinic.org/discussion/non-hodgkins-lymphoma-2c0eb7/

Fortunately this is usually slow to develop. Are you having symptoms? When is your MRI and PET scan?

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