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Memory issues while taking Tacrolimus

Transplants | Last Active: Dec 23, 2022 | Replies (18)

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@blbird33

How many months are you post transplant? I am 2 months post kidney transplant and do stumble with memory but not as bad as the first month. I hope my memory gets better each week. I like your idea of focusing on one task at a time. I take 0.5mg in am and same in pm. I had to have mine adjusted as I was shaking so much, could not write, and anxious. Happy holidays, BB

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Replies to "How many months are you post transplant? I am 2 months post kidney transplant and do..."

Hi @blbird33 😊
Congrats on your 2 month post kidney transplant! It sounds like you are taking a very small dose of Tacrolimis. What other immune suppression meds do you take? I am a two year post kidney transplant patient and I take Cellcept and Tacrolimis.

@blbird33, I am 13 years post transplant. I received a simultaneous liver and kidney transplant in April 2009 at Mayo Rochester. So, I have been taking tacrolimus as one of my immunosuppressant meds for 13+ years.
I used to tremble a lot, especially my hands. This made handwriting impossible for the first 2 - 3 hours after my morning dose. Over time, my medication doses reached a stable dosage and my labs are extended to every 3 months. My tacrolimus has been at a stable dose for, I'm guessing 7 years. My trembles do come back on occasion, bit it is something that I have learned to live with. It is a minor issue, considering the benefits of a healthy liver and kidney!

@mdplastics, I also had to make adjustments when driving. I need a quiet car with no radio or only one passenger, usually my husband. When traveling in an unfamiliar town with traffic, my husband is the driver! It is a plan that works well for us.