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Anyone with PV have insensitivity to cold?
Blood Cancers & Disorders | Last Active: Dec 24, 2022 | Replies (11)Comment receiving replies
@djab, interesting question. I'm tagging other members who have polycythemia vera to see if they have a similar insensitivity to the cold, members like @bluontene @jwn8700 @lindaw123 @tlsantin @hope19 @learnandlive @vmg44 @kibbykyle @buckaroobanzai @fishergramma.
You may also be interested in connecting with other PV-ers in these related discussions:
– Polycythemia Vera: Just been diagnosed https://connect.mayoclinic.org/discussion/polycythemia-vera-1/
– Polycythemia Vera: Is there anything I can do for fatigue at home? https://connect.mayoclinic.org/discussion/fatigue-2/
djab, do you think that the temperature sensitivity and insensitivity might be related to hydroxyurea rather than PV itself?
Replies to "@djab, interesting question. I'm tagging other members who have polycythemia vera to see if they have..."
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YES, I think the red blood cell has been mutated and does not carry enough healthy hemoglobin to the cells, I started taking Metanx (active form of B12) and has helped so much with fatigue and dizziness. Also mutivitamin is a must also...