Feeling down but hopeful

Posted by 143salmon @143salmon, Nov 29, 2022

Im desperate and looking for advice on doctors and what tests should I have my doctor add to the normal list.
I’m 44 female
I am considered good health but my body does get hit with random issues these days.
I’ve had to stop working and my life has been put on hold.
I need to work and I love to work. I’m a bit of an A personality type but more about helping people and getting stuff done to add value to my clients. Being stationary is a major shift.

Past issues
Gallbladder out at 30, uterine polyps at 40
Anemia
lack of Vitamin D
skin infections that don’t heal easily
Acetine Chelitis a lot and cold sores
many ear or viral infections.
2018- A tick in me for 24 hours but took antibiotics. Threw the antibiotics up 1 hour later, doc said it was fine.
Dehydration even when I drink pedialite
Crave sugar and salt but now after a recent appendix removal and major antibiotics, my cravings decreased. My diet is mainly Whole Foods with a snack or cheese here and there.

The last three years turned upside down:
debilitating brain fog
Difficulty with quick responses and my patience is low.
Pelvic pressure at times.
Pressure in my brain or skull. I wear an ice pack under my beanie and it helps.
Crackling in my head like rice crispies.
I have apathy or disinterest in motivating myself to do things but i don’t feel chronically depressed from all this. I feel frustrated and worried.
I don’t have energy to do stuff, like read emails, focus or have energy to reply. Same with phone calls and texts. I used to be t the queen of get crap done!
Buzzing or tingling in limbs like electrical currents, mainly legs.
Sometimes restless legs at night.
cramping or weak hands I now call the claw, lol
Two ear infections in two years that were insanely painful and one required antibiotics.
I take an SSRI and studies show it messes with your gut biomes.

Ugh where to start? My GP is great but he seems confused too.

Help please

Been diagnosed with IBS. Since my appendicitis in sept. my bowl movements have been varied.

I started running daily for 10-20 minutes and it helps my energy a bit but not cognition or the pulsing legs.

Antibiotics always make me feel ‘normal’ for a week after use but I can’t take them often for my overall health.

I tested positive for H1-b27 but I don’t have symptoms so I think it’s a latent thing or false positive.

My doc thinks it’s an autoimmune disease or an infection.

Could be
MS
Adrenal fatigue
Diabetes 2?
Lyme disease
Infections or bacterial or maybe a parasite?
CFS or ME
Or who knows.

All my test come back normal but it’s pretty clear something is not working with my body. It seems I can’t control my own bodies feeling.

I meet a generic ruhmotologist (spelled incorrectly I know) in February but feel I can’t wait or my mental health will suffer.

I need a doctor that hears a rainbow of symptoms and looks at things like bacterial or fungal infections or nervous system or hormonal issues. Someone curious and kind.

I feel like a worthless person sitting and doing nothing these days. I didn’t have insurance for two months and now bills are stacked up. Insurance starts 01.23 so I’ll go crazy on tests then.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

gillysmom | @gillysmom | Dec 3, 2022

One more thought about Lyme disease. M y son picked up Lyme disease after visiting his father who is a retired OB-Gyn-Cancer surgeon, who also got infected. Whch was fortunate, because his father was diagnosed with a secondary infection that frequently accompanies Lyme. When mt son failed to thrive after the first antibiotic treatment, his father kept urging him to get checked for tge second infection. It took him 2 months but he switched docs, and it was idenified. He was visiting me at the time to hlp me through post open heart surgery recouperation. He had an antibioic prescription with several weeks of treatment. The treatment ended whle he was still visiting, and he had a prescription for a blood draw to see if there was still active infection. I had been feeding him really nourishing foods, which I hoped would help his body resolve the secund infection and the blood test showed that the infection was gone. He had mentioned that before the acual diagnosis of the second bloood infection, his riary doc thought he had an incurable blood disease. The right diagnosis and treatment, with the urging of my former husband, likely saved his life. I cannot remember the name of the second infection the frequently accompanies Lyme, but your situation could be the same, especially when you have relief on antibiotics. All the best.

gillysmom | @gillysmom | Dec 4, 2022

In reply to @rashida "@gillysmom and @143salmon antibiotics deplete good gut bacteria so it is important to supplement with yogurt..." + (show)

My son had Lyme disease with a serious coinfection that was misdiagnosed as a blood disease. I looked up his pathogen and saw there were 4 other possible coinfection microbes. His was anaplasmosis, often missed, and missed by his primary doc. Fortunately, another doctor identified the pathogen through a blood test and treated it with antibiotics. A second blood test after the treatment confirmed that the infection had been successfully treated. He was really sick after the initial Lyme infection was treated, and misdiagnosed as a blood disorder. The other coinfections are: Lyme borreliosia, babesiosis Powarsan virus, and B niyamatoi infection. A blood test, especially for anaplasmosis, should tell you if you had a Lyme coinfection, what it is, and if it survived antibiotic treatment. The anaplasmosis bacterium can cause fatal disease. Because you feel better after antibiotic treatment, the possibility of this bacterial coinfection with Lyme makes sense to me. The correct diagnosis could be your healing path. All the best.