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How do I know if I have post interferon syndrome?

Infectious Diseases | Last Active: Sep 19 12:21pm | Replies (18)

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@nena7975

I did the interferon and ribavirin combination therapy in 2007-2008. I did the shots once a week in addition to the pills every day for 11 months. This was recommended as I had the worst genotype with a viral load in the millions. The treatments did work and I have been undetectable since 2007 (during the treatment) with no recurrence of the hep c. Over the years I have developed a lot of medical issues that I just recently put together as possibly being caused by the the interferon and ribavirin. Chronic fatigue, muscle and joint pain in numerous parts of my body (but primarily in hips, legs, back and neck), memory loss, I have trouble staying organized where before the treatment I was obsessively organized, low grade headaches, vision problems (vasculitis, retinal hemorrhage and a stroke in one eye resulting in vision loss, floaters in both eyes, etc), sleep apnea, high blood pressure, thyroid issues, gastroparesis, and a brain tumor/lesion. Additionally, I am constantly sick with sore throat, laryngitis, ear infections, colds, flu and pneumonia (and yes I get the flu, covid and pnuemonia vaccines).....it seems like I have a very poor immune system and catch every "bug" coming and going. I have had many doctors over the years and have been tested for everything imaginable to determine what could be causing some of these issues but nothing has been determined. I know my doctors all think I am a hypochondriac but these symptoms are very real. Does any of this sound like post interferon syndrome? The link provided seems more for symptoms of recent treatments rather than for people that did the treatment a long time ago.

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Replies to "I did the interferon and ribavirin combination therapy in 2007-2008. I did the shots once a..."

I'm not sure if anybody ever actually gets diagnosed with post interferon syndrome or not. I know that it sounds like u should be able to be diagnosed with it but getting a doctor to say so seems like only a dream