Worried, suspicious lesions found: Thought I was cancer free

Posted by vkm @vkm, Nov 30, 2022

I completed breast cancer chemo in October and found out this week that I have two suspicious lesions. One is on my spine and the other one is on my rib. I am scheduled for a PET scan tomorrow. I devastated to say the least...thought I was cancer free. Can anyone share any advice? Honestly don't know how I will handle another cancer diagnosis. Chemo was so hard on my body. Was hospitalized twice with chemo related issues. SO WORRIED

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@anjalima

I wondering if one can choose flat initially and then reconstruct later? Did the surgeon say this was an option?

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Plastic surgeons told me it is still an option.

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@vkm

I am thrilled to say my PET scan showed no cancer. Scheduled for my first post oper mammogram today and radiation should begin after Christmas. So blessed!!!!!

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WONDERFUL NEWS! 🌸 so happy for you.

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@anjalima

There are many milestones and a quick learning curve for decision making. Ask your questions here and everywhere. It really helped me to organize and self advocate when I had some understanding from research and from some who went through the process before me.

If possible bring a second set of trusted ears to your appointments. This helps in processing the information which is rather intense.

Hopefully the tumors will allow an ONCOTYPE analysis which can be helpful for treatment decisions.

There are lots of good tips for surgery prep too so check back when you are ready.

Best on your journey. 🌸

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Hi @anjalima @windyshores and all,

I just got a call from Radiologist that my 2nd spot of 5.6cm is benign. and 3rd spot 2.8cm is DCIS. so now I got 2 DCIS - 1.2cm and 2.8cm in 2 different locations.

I am not sure if there is opportunity to do the lumpectomy instead of mastectomy with 2 DCIS >5 cm away from each other. will check with Surgeon.

This is the best news I have heard since Nov.

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@pinkbean

Hi @anjalima @windyshores and all,

I just got a call from Radiologist that my 2nd spot of 5.6cm is benign. and 3rd spot 2.8cm is DCIS. so now I got 2 DCIS - 1.2cm and 2.8cm in 2 different locations.

I am not sure if there is opportunity to do the lumpectomy instead of mastectomy with 2 DCIS >5 cm away from each other. will check with Surgeon.

This is the best news I have heard since Nov.

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So happy for you! Making your holiday a bit merrier. 🌸

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@pinkbean

Hi @anjalima @windyshores and all,

I just got a call from Radiologist that my 2nd spot of 5.6cm is benign. and 3rd spot 2.8cm is DCIS. so now I got 2 DCIS - 1.2cm and 2.8cm in 2 different locations.

I am not sure if there is opportunity to do the lumpectomy instead of mastectomy with 2 DCIS >5 cm away from each other. will check with Surgeon.

This is the best news I have heard since Nov.

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That is great news and thank you for telling us! Let us know if you are having a mastectomy or other surgery.

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@pinkbean

Hi @anjalima @windyshores and all,

I just got a call from Radiologist that my 2nd spot of 5.6cm is benign. and 3rd spot 2.8cm is DCIS. so now I got 2 DCIS - 1.2cm and 2.8cm in 2 different locations.

I am not sure if there is opportunity to do the lumpectomy instead of mastectomy with 2 DCIS >5 cm away from each other. will check with Surgeon.

This is the best news I have heard since Nov.

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Hi pinkbean.
I recently had a bilateral lumpectomy. My left breast had DCIS and my right breast had 3 “areas of concern”. I think 2 of the areas were labeled DCIS and one area was “suspicious” and considered pre-cancerous. I still had a lumpectomy and all three areas were removed.
Afterwards, the right breast blew up like a balloon with fluid because so much material was removed.
It’s been 6 weeks since the surgery and my breast is much smaller now and I’m more comfortable.
I see my surgeon again this week and my 2nd-opinion oncologist and radiation oncologist next week to talk about post-surgery treatment options.

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@pinkbean

@colleenyoung
I plan to open a new topic but can't find how and use this topic here.

I am diagnosed as DCIS first for 1.1cm and did a contrast MRI, they found another 2.8cm suspicious mass & 5.6cm DCIS on the same breast, Radiologist suggest an Ultrasound and Biopsy.

Today I went for ultrasound and the radiologist found a new spot that want to do the biopsy.

Does anyone have more than 2 types of cancers on same breast and multiple spots? How was that treated?

I know I may have a Mastectomy due to multi spots. But just can't afford to hear more and more cancer spots found after each test.

Looking forward to anyone's reply. Thank you.

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Here’s how to start a new topic/discussion:
TIP: Before starting a new discussion, you may want to use Search to see if there is already a discussion for your topic or question that you can join. Learn How to Search on Connect.

1. Go to the Breast Cancer Group. https://connect.mayoclinic.org/group/breast-cancer/
2. Click Start a Discussion.
3, Enter a title on the topic you want to discuss.
- Briefly describe the topic to help others find it.
4. Write your message.
5. Click POST DISCUSSION.

See more tips and how-to instructions in the Help Center https://connect.mayoclinic.org/help-center/

Great news about the second lesion being benign. Did you decide where to do your surgery? Lumpectomy or mastectomy?

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@tctredwell1

Hi pinkbean.
I recently had a bilateral lumpectomy. My left breast had DCIS and my right breast had 3 “areas of concern”. I think 2 of the areas were labeled DCIS and one area was “suspicious” and considered pre-cancerous. I still had a lumpectomy and all three areas were removed.
Afterwards, the right breast blew up like a balloon with fluid because so much material was removed.
It’s been 6 weeks since the surgery and my breast is much smaller now and I’m more comfortable.
I see my surgeon again this week and my 2nd-opinion oncologist and radiation oncologist next week to talk about post-surgery treatment options.

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@tctredwell1
Thanks for the reply. I consulted 3 breast surgeons and all of them said mastectomy because of 2 dcis in same breast.

I had single mastectomy on 16th. It went well and I am recovering. Waiting for the surgery pathology results this week and then meet with oncologist. I just saw you have 2nd opinion oncologist, I may consider have 2 oncologists to consult the after surgery treatment plan. Thank you

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@colleenyoung

Here’s how to start a new topic/discussion:
TIP: Before starting a new discussion, you may want to use Search to see if there is already a discussion for your topic or question that you can join. Learn How to Search on Connect.

1. Go to the Breast Cancer Group. https://connect.mayoclinic.org/group/breast-cancer/
2. Click Start a Discussion.
3, Enter a title on the topic you want to discuss.
- Briefly describe the topic to help others find it.
4. Write your message.
5. Click POST DISCUSSION.

See more tips and how-to instructions in the Help Center https://connect.mayoclinic.org/help-center/

Great news about the second lesion being benign. Did you decide where to do your surgery? Lumpectomy or mastectomy?

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@colleenyoung
Thanks for the guidance.

I did single mastectomy with the more experienced surgeon. It turned out she was an excellent surgeon that different nurses said I am in good hands. One nurse referred her friend to see my surgeon too. I am recovering well. Thanks

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@pinkbean

@tctredwell1
Thanks for the reply. I consulted 3 breast surgeons and all of them said mastectomy because of 2 dcis in same breast.

I had single mastectomy on 16th. It went well and I am recovering. Waiting for the surgery pathology results this week and then meet with oncologist. I just saw you have 2nd opinion oncologist, I may consider have 2 oncologists to consult the after surgery treatment plan. Thank you

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Wishing you a speedy recovery. 🌷

Tomorrow I see the second-opinion oncologist and Friday the radiation oncologist. I’m terrified of radiation - well, not the radiation actually, but the possible side-effects. I have a lot of questions and a lot of anger. (I almost feel sorry for the doctor!)

Take good care of yourself and keep me posted.

Theresa

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