Hi, I also have this godawful condition and can further attest to the effectiveness of Beta-Alanine (BA). I found out about it from the same Facebook Support Group that @crunchymommy mentioned above. I mostly have my "attacks" after showering (or if I've sweated a lot, thank God I live in Sweden). As far as the showers/bathing goes - If I take 1 scoop (~1g) mixed with water 15-20 minutes prior to showering I don't feel any itching at all. My current supply is in crystal/powder-form, but I've heard that pills are also available (I just bought the first one I could find).
The only side-effect I have experienced thus far is a very slight sense of heat and tingling on my face and upper torso that only lasts a short while some few minutes after taking the BA. Compared to a full-blown attack it is like a mosquito bite in comparison.
Judging by the testimonies above I'm guessing that we don't necessarily all suffer from the exact same disorder (if that's the correct term?) since some of you describe getting relief by using wildly different medications, but rather that the symptoms are very similar. My point being that I don't think BA will help everyone - but going by the experiences people have shared in the Facebook Group BA seems to help at least 70-80% if not more of the people there. The required dose and whether the symptoms disappear altogether varies from person to person, but everyone making a post after having tried it that I can recall in recent memory praised BA as the only thing that's given them a noticeable proper relief from symptoms.
I wish some research could be made on this substance with this use in mind since it could result in a specifically engineered drug instead of this supplement. Being able to get this on prescription at a pharmacy would be really nice here in Sweden since our medicine is fully subsidized if you reach a certain amount in expenses over a 12 month period (I have others for unrelated reasons). Further research could hopefully also investigate whether this is safe to take while pregnant - something that hasn't been done at this time to my knowledge. Not an issue for me personally, as a man, but I bet pregnancy is hard enough without having to deal with something like this too.
That ran a bit longer than I intended.
IN SHORT
I also recommend Beta-Alanine, it seems to work for a lot of us
I need help! I burn, itch, stinging, biting and crawling skin after a shower. It started about a year.a go and now is worse. It last 2-3 DAYS. I have been tested for PV (bone marrow test negative), allergies both skin and blood, I have no allergies. Tried all antihistamine,perscription and H2 inhibitors ones too. No change or relief.
Already on gabapentin for a spinal cord issue. Test to see if I have started menapause to see if that is it, no hormone change. Primary and allergist said it was idiopathic. I NEED help. I have taken out gluten. Been to my neurologist said make sure take medicine on time, which I do. Who do I see, what do I do, I cry myself to sleep some nights. As long as I don’t take a shower this does not happen. I am afraid to take a shower!