Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Posted by kristem2020 @kristem2020, Jan 2, 2021

Good evening, I’ve recently been diagnosed with PMR. It came on a week after my flu shot October 23, 2020.

Has anyone experienced the same diagnosis after a flu shot?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@npostusa

Hi John, I am glad that I found this page and for your reply. To begin, I had a severe case of Lyme Meningitis years ago, so when PMR reared its ugly head, my wife and I thought we were dealing with Lyme. After about two months of trying to figure out what it was, I had to walk my daughter down the aisle to get married. My wife and I both went to see the doctor as my conditioned had worsened and the doxycycline was just making me sick. Still on the Lyme thing, we thought I may intravenous treatment again. After my daughter’s wedding, I went about 3 weeks before asking my wife to bring me to the hospital. There they gave me a spinal tap, did not feel it, to test to see if the Lyme had come back. My condition at that point was that I could barely stand, or walk, but had to go to the bathroom about every 20 minutes? Anyway, they had to roll me on a bed once in the hospital, and I loss a lot of muscle. A year and a half later, I have not fully gained my strength, and sometimes I am stronger that other times. Anyway, in the hospital they gave me pain med, intravenous for the Lyme, and 1000mg of prednisone- I later confirmed with my rheumatologist. When I came home, they taken me to 40 mg a day it took me about a month to see a rheumatologist, and then he kept me on the 40 and slowly weaned me down. Currently I am at 4 mg and struggling at times our goal is to keep me at 4 mg for about a month in the last eight months. I came down from about 11 or 12 milligrams, and it was a roller coaster ride. Every time I’ve made a change with the exception of of one to twice where it was easier. In addition, if I forget to take my medicine, it is like running into a Stonewall. My diet is pretty decent and I’m trying to stay away from things inflammatory I have a question for you is beer inflammatory? If so, I have tried to cut down a fair amount. finally I work for a pharma company as an IT generalist and hence was somewhat reluctant to talk about it publicly. I hope this answers some of your questions, I struggled to submit a Vaers report but did so yesterday. After I got better, not knowing, I took a third shot, Moderna. The only thing that happened here was I got a lot of breakout on my back side - bumps - pimple like, and they would break and bleed. It was not monkeypox, but I had to go see a doctor then Dermatologist who gave me medicine and it eventually went away - do I know if it was the third shot - not sure.

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Love your profile photo @npostusa! You've had quite a struggle and it sounds like you are doing all the right things to help. Not only that you helped me by asking is beer inflammatory. I didn't have a clue but I stopped all alcohol after being diagnosed with small fiber peripheral neuropathy as I know that alcohol can make neuropathy worse. Thought I would miss the beer but I don't. Back to your question, I always try to learn at least one new thing a day. Admittedly, I sometimes relearn the same thing more than once 🙂 Beer is good for you!

"Clinical studies have suggested that the moderate consumption of beer is beneficial for human health, mainly due to the phenolic compounds with antioxidant and anti-inflammatory properties."
-- Redox and Anti-Inflammatory Properties from Hop Components in Beer-Related to Neuroprotection: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8226943/

What helped me when tapering down on prednisone was keeping a daily log and writing down my level of pain when I got up in the morning and what dose I was taking that day.
It also helped me when I was following up with my doctor or rheumatologist on any tapering problems I had.

Have you tried keeping a daily log of your pain and dosage?

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@johnbishop

Love your profile photo @npostusa! You've had quite a struggle and it sounds like you are doing all the right things to help. Not only that you helped me by asking is beer inflammatory. I didn't have a clue but I stopped all alcohol after being diagnosed with small fiber peripheral neuropathy as I know that alcohol can make neuropathy worse. Thought I would miss the beer but I don't. Back to your question, I always try to learn at least one new thing a day. Admittedly, I sometimes relearn the same thing more than once 🙂 Beer is good for you!

"Clinical studies have suggested that the moderate consumption of beer is beneficial for human health, mainly due to the phenolic compounds with antioxidant and anti-inflammatory properties."
-- Redox and Anti-Inflammatory Properties from Hop Components in Beer-Related to Neuroprotection: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8226943/

What helped me when tapering down on prednisone was keeping a daily log and writing down my level of pain when I got up in the morning and what dose I was taking that day.
It also helped me when I was following up with my doctor or rheumatologist on any tapering problems I had.

Have you tried keeping a daily log of your pain and dosage?

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I just started a journal today, as I have not kept one in a long time. The journal was more for studying the Bible and personal stuff. That said, I can incorporate a pain chart. BTW, I really did well these last couple of months and went from 7 to 4mg. We are in a holding padding for a month before I drop 1 mg.

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@marieirene

I can’t seem to get below 11mg of prednisone so he upped my methotrexate to 8 tabs once a week.
My primary says no vaccines while active PMR

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I absolutely think the Moderna vaccine triggered PMR. After the second vaccine, I got PMR symptoms about a month later. I do not take any vaccines nor boosters by advice of my rheumatologist.

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@npostusa

Hi, I am just discovering this page. About a week after I got my second shot, I began to feel sick. I thought that Lyme had come back, and the doctor put me on doxycycline. In early May I told her it was not working so they put me on a prednisone script. I was fine, and shortly after I was walking rather weekly. Got another script so I could walk my daughter down for her Wedding. About 20 days after that I ended up in the hospital and have been on prednisone ever since. The good news is I am down to only 4 mg, however, it has been a crazy rollercoaster ride. I get tired, have pain, and if I forget my meds or when I reduce - the pain comes on like running into a brick wall.

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I relate! I was on 2.5mgs of pred until something caused a flair. I went up to 5mgs and now am back to 3. In the meantime, I got Covid. I am praying it will not cause a terrible flair. I got molnupirivar, but my covid symptoms have been light so I have not taken it. Still not sure of all the side effects.

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@janiceem

I also believe that the second COVID Pfizer vaccine sparked my PMR. The Pfizer and Moderna vaccines were of the mRNA type, which is uncommon for vaccines. I've never had a flu vaccine because they are only 18% effective and feed big pharma. I've had a shingles vaccine before Shingrix one came out--I'm still on the fence about getting this "newer and improved one." It is questionable that I ever had PMR since my new rheumatologist believes that the fact I only had symptons while laying down is not indicative of PMR. I was a extremely healthy prior to the onset of my night pains-- I rarely ever got sick. If I ever get another vaccination, I will avoid the mRNA type.

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This is my concern about the vaccine causing a flareup. My PMR started after the Shingrix vaccines. I had received the Zostavax years earlier. So far, I have had three Pfizer Covid vaccines without flares. But I’m concerned with getting another as I am really thankful to be in PMR remission and off prednisone. Appreciate everyone’s input on this. I want to minimize COVID infection but not at the price of PMR.

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Yes! I got it too after a flu shot! My shoulders started hurting and hips..... Finally went to doctor..... She wants me to start prednisone..... I have not started it yet.... I'm rather skeptical of medications. My CRP was only 1.0 mg.... I didn't think that was that bad. I'm still taking ibuprofen twice a day.

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I had the Pfizer booster Oct 21 and 2-3 weeks later diagnosed with PMR

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Likewise, but my was in March, and I really did not know what I had until June. Long story, I thought it was a flair up of a serious case of Lyme that I had in my spine (Lyme Meningitis), but that turned out to be a red Herron. It was not until I took prednisone to walk my daughter down the aisle. It was the second time I took the prednisone because the Doxycycline was doing nothing.

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@vandyms1974

I absolutely think the Moderna vaccine triggered PMR. After the second vaccine, I got PMR symptoms about a month later. I do not take any vaccines nor boosters by advice of my rheumatologist.

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I do not think I would take another even if my rheumatologist recommended it. There are a fair amount of therapeutics that can help if i get covid.

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Similar experience. Pfizer booster on Oct 2021 with PMR symptoms within 3 weeks. Officially diagnosed in Feb 2022. Have moved from prednisone (not able able to taper without flare) to Medrol with good results. I personally feel there is a direct correlation based on my history.

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