Hello!
So I was recently diagnosed with ET as my platelets rose from 300-to 650 in 2yrs, then up to 950 in 3 months. I'm at the Mayo, and they did many blood tests and determined I had Jak2 and did a bone marrow biopsy. Came back that I was ET and some fibroids but not pre-fibrotic. I'm 67 and my Hemo Dr recommended Pegasys injections weekly as opposed to Hydrea. Said Hydrea would definitely bring down platelet levels minimizing clotting risks, but may not prevent the disease from progressing. So far, 3 weeks in, the side effects are minimal. They will check my blood monthly to see. The Interferon is very expensive even with part D. This is a journey for all of us as not sure they have had allot of study data as this is not a common disease. Best of healing to us all. Blessings, Rick