Being recently diagnosed myself, this past flare up was so intense. I was literally driving myself mad trying to find relief. I am 2 weeks in on a 4 week prednisone treatment (had to fight for a prescription), while also on my 2nd month of doxycycline. The Triamcinolone Aceetonide Cream did nothing for me. I also use OTC Sarna cream that many have talked about on here. The cooling effect helps take your mind off the itchiness. I will sometimes have to apply it more than once, but it does help. I have also started red light therapy sessions. At least 3-4 times a week for 15 min sessions. Lukewarm showers with using Dove Anti-stress body wash and loofah works well for me and I use an in shower moisturizing lotion before drying off.

I feel like I have thrown everything that I can at this and am kinda scared as to how things will be when the steroids are completed. But I also feel like stress is one of my triggers and the week my flare up started, I was under immense stress with my job. I have been less stressed feeling since Thanksgiving, so I feel like that has helped as well with my response to everything I am doing.

With this disease being nearly unheard of, I feel like I have to do all I can. I am going to see a new dermatologist this coming week. Not sure what to expect since I am responding well to all that I am doing, but hoping for a better supporting dr.