Living with Neuropathy - Welcome to the group

My husband has PN and I ,as his wife, am supportive. He’s tried a lot of treatments- sanexas machine, injections, acupuncture, physical therapy. Only physical therapy helps. He
has tingling in his feet and weakness in his legs that make it hard to walk. Any suggestions of
What else to do?

I have extreme neuropathy. I can't balance, on my feet, the pain goes up my legs to my knees. My legs feel like logs. They are cold in the morning. I get shooting electric pains shooting into my legs. These pains have been getting stronger, and now I get them on the bottom of my toes. My hands are numb most of the time, and I can't pick up things, and I drop things all the time. My colon feels like it's clogged. I used to have small pencil size, bowl movements. now they are more like mush. I feel like my colon is clogged. I don't know what to do. My doctor told me when I was diagnosed that there was no cure for me. I have felt like I've been dying for the last few years. I refuse to go back to him, he was a jerk. I am currently away from home for the next 5 months. Last year I fell and broke my femur, had surgery, and fell again, and broke the same femur in a different place. The surgeries have made my neuropathy spread quickly. I'm afraid to have any surgery.

What's helped me walk (when the weather is nice!) is a set of lightweight trekking poles. They also help with my balance issues when walking.

What's helped me walk (when the weather is nice!) is a set of lightweight trekking poles. They also help with my balance issues when walking.

Maybe you don't need a new doctor, but the right therapist?
I can't put my fingers on the post right now, so I'll repeat. After a long-time imbalance in the body, we gradually begin to walk differently. After years of limping on bad hips, followed by more limping due to failed implants, I had terrible back pain and one of the new hips always hurt.
My very diligent ortho determined that hips and back were not the problem, my uneven walking was. He referred my to a PT clinic that specializes in getting people walking after severe injury, stroke or amputation.
After analyzing my walk, I was put through a course of gait training, similar to what is described in this article https://www.verywellhealth.com/gait-training-in-physical-therapy-5069884
Therapy was twice a week to begin, with a series of exercises to be done twice daily at home. At first we did much of it in a therapeutic pool, because walking was so hard. After 2 months I graduated to a home and pool exercise program for a total of 6 months. It was a LOT of work, but 10 years later, I'm still doing pretty well and I only limp when my knees hurt. Not everyone will have such good results, but it is worth a try to get your life back.

Let me know what your doc thinks of the idea.
Sue

Hi Colleen, I'm Mary and have just been diagnosed with neuropathy. I had apparently had it for several years with tingling that only bothered me at night, but now that I have burning pain in my toes all the time, I have an official diagnosis. I am going to read through other posts on this site looking for topical creams that will help the burning pain. I am 85 and take so many other prescription meds that my doctor wants me to avoid more prescription meds as long as possible. I'm looking forward to learning more about what I can do to help myself.