Mysterious Blindness

Posted by marionli @marionli, Oct 26, 2022

Severe vision loss over two years. I have had 4 MRIs, 2 lumbar punctures, various labs, 17 Eye Exams, 1 CT scan. Additionally, I have been evaluated by 4 Ophthalmologists, 2 Neuro Ophthalmologists, 2 Endocrinologists, and 1 Neurosurgeon. My doctors have explored possible diagnosis of idiopathic intracranial hypertension, papilledema, sarcoidosis, lymphoma, pituitary tumor, brain lesion, and abnormal tissue near the optic charisma and pituitary gland. However, all of my doctors have not been able to confidently diagnose my condition.

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marionli | @marionli | Nov 15, 2022

Hi,

I’d like to speak with someone regarding the best way to receive assistance getting around the campus and any amenities for patients ie. parking, subway, sending medical records, bringing medical records to have uploaded.

Rachel, Volunteer Mentor | @rwinney | Nov 28, 2022

In reply to @marionli "Hi, I’d like to speak with someone regarding the best way to receive assistance getting around..." + (show)

Hello @marionli -

Here is a visitor guide link with information regarding travel, lodging, parking, etc for Mayo at Rochester, MN.

- https://www.mayoclinic.org/patient-visitor-guide/minnesota

Will you be visiting the Rochester campus? Please let me know if you need any more information. Your appointment is coming soon. Are you anxiously waiting?