Medicare question: Traditional or Advantage approach better for MPNers

Posted by treeore @treeore, Nov 19, 2022

Unfortunately, my ET diagnosis comes right at the time when I start Medicare, and I now have just a week to make my choice for the first year: traditional/original medicare with expensive extra supplements, part G (gap) and part D (drugs)? I live in the NW where there are some smaller (and perhaps more ethical??) advantage plans that could save me lots of money, but already I've scheduled an out of state video appointment at the Mayo Clinic to help me make the decision about treatment for ET. I know Original Medicare is more portable, more flexible, and will contain fewer surprise bills--but also sense I am going to have some trouble finding GPs who accept new medicare patients, and I'll have to forgo alternative treatments (like from my acupuncturist) if I go that route. It also looks to me as if I'll spend over $5000 this year on parts B, G and D, and although I will have no copays I will also have no maximum out of pocket amount. Wow, so much for making healthcare affordable for retired people!! I've been doing a lot of reading in the NYT about advantage plans and medicare fraud, and about advantage plans sometimes denying treatments and medical choices. I should be worrying about whether I'm ready to start taking Hydroxyurea, but instead I'm worrying about expenses to come...

You who have been riding the MPN rodeo longer than I and had ups and downs of treatment expenses and trials--which plan did you choose and why?

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@eileen11108

I suggest you contact Garrett Ball at 65Medicare.org. He is a broker licensed in I believe 44 states. He helped my husband when he made his decision, There is a wealth of information on the website. He came up with the best companies at the lowest rates, They will give you quick quotes online. They get their fee from the insurance company,
Eileen

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You could also contact your local (State Health Insurance Program) SHIP office. These counselors are trained by both Medicare and your state agency. They understand Medicare and can provide unbiased guidance. They are volunteers and are not insurance agents or brokers. They will know which Advantage Plans, drug plans and carriers for supplemental coverage are available in your area.

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@treeore

Thanks so much, all. I'm looking into your suggestions. The clock is ticking away to my Dec 1 deadline!

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Please let us all know your final decision.

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We tried Medicare with a crappy Part D. When my husband had a heart attack, we found out how inadequate that was.

We now have an advantage plan thru our regional hospital system. If you are willing to stay in the network, it is a good deal. If you like to get second opinions and hit the big university research hospitals and try new drugs, not so much.

It's all about what's available, the level of care you can live with, and what you can afford.

There is no perfect plan unless you are wealthy.

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@nohrt4me

We tried Medicare with a crappy Part D. When my husband had a heart attack, we found out how inadequate that was.

We now have an advantage plan thru our regional hospital system. If you are willing to stay in the network, it is a good deal. If you like to get second opinions and hit the big university research hospitals and try new drugs, not so much.

It's all about what's available, the level of care you can live with, and what you can afford.

There is no perfect plan unless you are wealthy.

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It is a big decision finding the right Medicare plan.
We have been on a UCare Advantage plan which includes part D since we started on Medicare 11 years ago and have been very happy. This year my husband was diagnosed with multiple myeloma and he reached his maximum of $3,200 very quickly with the chemo drugs but he hasn’t paid a dime since. We need no referrals and Mayo is in our network. Not all advantage plans are bad. I think one thing to watch is that the drugs you take are in their formulary. Good luck!

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Cancer is one of the main reasons I chose not to take and advantage plan. I am glad it works for you.

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OK, a question about Medicare choice and chemo drugs for ET and MPNs! My Medicare advisor/broker put it to me like this: If your chemo drug is bought at a pharmacy and taken at home (like HU?), the advantage plans are better because their drug plans are superior to Traditional Part D plans. If one should get the choice to take an injectible (Interferon? Pegasys? Besremi? ones I have not been offered yet!), are those drugs considered pharmacy drugs or in office treatments? If "in doctor's office" then Traditional is the way to go. I know there are multiple other comparisons between the choices, but I'm trying to focus on the drug issue right now. Broker says you can switch plans mid year if your treatment shifts and you can see you are not in the best spot. Has anyone done that?

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I've been on Medicare for 2 yrs, and spent much time researching my options. I chose straight Medicare (A & B) + Plan D with Aetna + Plan G with Aetna. Of course I didn't want to spend a lot in premiums (my total premiums almost $400/mo). The best decision I've ever made!! And worth every penny. Was very healthy at 65, but the "what ifs" concerned me. Indeed, the what-ifs have happened nonstop since then...surgeries, hospitalizations, multiple specialists, very expensive meds. The fantastic news is I never have to worry about out of pocket expenses-- no co-pays anywhere, no referrals required (can see any doctor I want in the U.S.). Because of Plan G, I am 100% covered. Advantage plans have limitations, restrictions, and don't cover everything. I've got friends who regret choosing & they switched. Being ill is stressful enough, but at least I don't have any money stress for any/all the care I need. I'm not thrilled with Plan D, however, I take an extremely expensive med that I could never afford without Plan D. My monthly outgo for the Rx is only $47, vs. $600/mo. Good luck to you. P.S. Medicare.gov reps are extremely helpful. They've helped me several times (Medicare.gov).

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@treeore

Thanks so much, all. I'm looking into your suggestions. The clock is ticking away to my Dec 1 deadline!

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I can't agree more with Eileen comment about freedom to go out-of-network. During Covid, I had to get a hysterectomy out-of-state bcuz there was no "elective surgery" in my city for over 6 months. When facing possibility of ovarian cancer, I couldn't afford to gamble. She is also so right about switching plans if you have pre-existing condition. A huge gamble at 65 yo. Good luck.

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@quind03

The same thing has happened to my husband and me. We live in CO/AZ and after a lot of research we opted for Original Medicare with plan G. I understand your concern about Part B coverage. Your supplemental plan G pays the 20% not covered by Part B, as well as, the $1556.00 hospital deductible. All you pay is $233 deductible.
So as long as you have a supplemental plan there is no reason to worry about high out of pocket costs for hospitalization or medical procedures, office visits and durable medical equipment. You are in your initial enrollment period, which means you can not be turned down or go through underwriting, You are guaranteed coverage for your supplemental plan.
We decided to sign up for Original this year, we wanted the flexibility to go anywhere, including Mayo as we negotiate my husband recent diagnosis. we can always switch to a Advantage plan in the future. ( when I checked with Mayo, they accept OriginalMedicare, but did not accept the Advantage Plan in our area-not sure if that will be the case in 2023)
Even though the Advantage plan sounded like it offered more stuff, when I compared costs for the services we need Advantage plan was more costly. Here is just 1 example.
Specialist Office copays were $60 per visit/compared to $0 with Original Medicare. Currently we meet with the specialist weekly. My husbands cancer diagnosis was a big surprise to us. We do not want any surprises when it comes to paying our medical bills.

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Such helpful info! Your details now have me wondering if I need Medicare B, because I have Plan G. The B plan is $170 premium/mo. Plan G (Aetna) is $190. Wondering now if I'm paying more than needed.

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@wiggins32

Such helpful info! Your details now have me wondering if I need Medicare B, because I have Plan G. The B plan is $170 premium/mo. Plan G (Aetna) is $190. Wondering now if I'm paying more than needed.

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Not matter what plan you take….supplement G or Medical Advantage….you must pay Part B. If you are on Social Security it is taken right out of your monthly Social Security. Read the plans…they all very clearly state you must have Part B.
Supplement G pays all except for the Part B annual deductible.
Eileen

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