Post Covid Symptoms and what has helped me.

@hopeful1953 it's so weird we have the same numbness on our back! Mine is just below my right shoulder blade however it doesn't have any discoloration as you described with yours. I guess I need to find an open minded neurologist as I haven't consulted one yet. I live in TN & I think Vanderbilt has a long covid treatment facility. I may need to check that out. But please keep posting and let me (us) know what's going on with you. I'm so perplexed with all of this.

I got 2 COVID shots & 2 boosters & still got COVID September 5th, 2022. Have been struggling with long haul symptoms ever since. Have been nauseous, with headaches, muscle aches, brain fog, neuropathy & exhaustion. Headaches are less often. It is slow recovery- just when you think you are getting better, you feel awful again. This has been going on for almost 3 months. Wondering when I can get my normal life again?

What is LDN?

Low Dose Naltrexone

It is nice to know there are others out there that know how I feel and what it's like feeling like you are suffocating from just lifting your head to check the time in bed. Or sitting in the complete dark and silence for months of a migraine that never stoled. The second I start moving or exude any energy I sweat so much I'm not exaggerating I can make puddles if I stand in one spot and soak through hoody sweaters and even wetting the lining of jacket but what scares me is the extreme pain in my lungs like I've been stabbed in each lung and salt poured into them while I'm trying catch breath but not just out of breath feels like I'm suffocating and need about an hour of laying down after using the bathroom.
What isn't comforting is the refusal of our hospitals in Adirondacks NY to check or even treat anyone that has past addiction, covid and long covid, fungal infections leading to disease, and parasites. And they don't offer referral they won't let you inside if you have a sniffle or walked in the cold so their no touch thermometer can't take temperature. When I had appointment to have lungs checked I mentioned it's symptom of long covid. I had to leave no one exhibiting signs of covid are allowed in. They won't even treat an overdose for most the addicts here. I was one 10 years ago and been discriminated against since. Almost lost my life from refusal to treat an emergency viral infection in my chest wall. Anyway, after I left hospital angry, I emailed doc through health portal explaining symptoms and worried about blood clots explaining the pain. Begged for a prescription inhaler until he can see me. The next 4 appointments were cancelled on me and then I gave up because 3rd doctor to do so and only 2 others in that hospital. But all the other branches in the surrounding areas are exactly the same so I've got no hope. I pray that things aren't like this for the rest of all of you suffering like this. Having no hope of help and knowing I won't have it when this does cause an emergency has forced me lose all hope in getting help. I'm disabled. Travel is too difficult. I'm stuck here in the dark with symptoms that have only gotten slightly worse over the 18 months I been here. Prayers and best wishes to all of you.

I have been using Taurine (Now brand) 2/day between meals and Boron 3 mg (any brand) 2/day between Taurine and meals for pain, and it works. Taurine is an essential Amino acid that supports neurological functioning. Boron, essential for strong bones andI readt stos pain. It hrlps with my joint pain and neuropathy. Both are ntural body chemicals and, therefor, relatively nonintrusive. Perhaps worth a try. I have alo read that itchiness canbe associated with liver disease. Have you had a genral blood test that would include lver function? Wishes for your recovery and return to enjoying life.

The story of your treatment makes me so angry snd sad for you. I lived in a small town in OREGON for 10 years, and was so sick from medcal treatment and neglect, I had infections throughout my body - kidneys, bladder, stomach, ureter, and more. I walked bent over. This started 6 years before Covid. My primary did not return my calls for 1 1/2 years. I finally started treating myself. Read and researsearched as much as I could and the rest was a combination of what was working, intuition, and luck. Got over most of the infections, My Moderna vaccine injury has left me in a similar poaition as you, but now I have docs that respond. I live in Northern Va with my son after becoming disabled from the Moderna vaccine, but I am still bedridden.

Sorry to hear about your infections and the lack of care from your local medical community.
What was your Moderna vaccine injury about?
Hopefully things have gotten better in Oregon.

I had Covid 6/30/22 and was an avid walker (30 miles per week) and ended up fatigued and had SOB. I tried walking about a week afterwards of contracting it and could only muster 1/2 mile. My legs felt like I had added weights to them so I added ashawaghanda to my routine meds and kept taking antihistamines (Zyrtec in the PM & Allegra in the AM plus Pepcid AC 2x day), added BCAAs, extra protein and slowly started lifting weights. 3 months later I felt so much better and it continues on each month that passes. I only take Zyrtec now and an occasional Pepcid. Hope you continue to improve!