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Waldenström's Macroglobulinemia

Blood Cancers & Disorders | Last Active: May 25 10:40pm | Replies (135)
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@kincarnati

Hello,
Thinking a Waldonstoms diagnosis is eminent. Have IgA deficiency and Selective IgG 2&3 deficiency and an IgM spike- have been getting ver sick with upper Respiratory Illness, asthma, gastric disease lately. I turn 60 this year and have had MGUS monitored since 2014 . Has anyone been storing their own Stem cells, received them or heard about this therapy?

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Replies to "Hello, Thinking a Waldonstoms diagnosis is eminent. Have IgA deficiency and Selective IgG 2&3 deficiency and..."
ejrquast | @ejrquast | Nov 23, 2022

I am sorry to read you are now experiencing WM symptoms. I recommend that you contact the International Waldenstrom’s Macroglobulinemia Foundation, IWMF, at https://iwmf.com/
I was diagnosed in 2014 and am thankful for all the excellent educational materials and support through the IWMF.
I personally have not experienced stem cell collection but have a member in our MN & WI support group with personal experience. If you search for the IWMF, link above, you will see “Patients and Caregivers”. If you click on that, you will see all the support and educational materials available including the LIFELINE.
If you have questions or need direction, I would be most happy to assist.
The great news is, since 2014, WM treatments and research has greatly improved. With the IWMF, you are never alone with our rare blood cancer.

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