1. < Neuropathy

Ideas for pain relief from Small Fiber Neuropathy (SFN)

Posted by somisgirl @somisgirl, Sep 6, 2019

I just wanted to pass along some ideas for those of you with idiopathic small fiber neuropathy. I am a 60-year-old female in excellent health other than the onset of this about a year ago. I do not have diabetes or any other detectable health issues.
I started some new things a few weeks ago and this week I have had some remarkable relief. I am not sure if what I have done is why, or which thing might have helped, but still wanted to pass this along just to give some of you some things to try.

I wear compression socks. This seems to help with the pain and pressure I feel in my feet and ankles.
I started taking Evening of Primrose oil twice a day.
I have cut my caffeine intake by at least two-thirds and now drink mostly green or black tea. I had heard that caffeine could irritate nerves...worth a shot.
I exercise, which I have been doing for over 20 years. I think it improves circulation which I think really helps with nerve health.
I added niacin. I will aid in blood flow, also good for circulation.
I use a cream called DMSO which i put on my feet and ankles in the morning (numbs the pain)

I don't know if any of this could be helpful for you or not, But I seem greatly improved recently......I have tried everything and am always looking for new things to try in order to function with this awful condition.
I am still taking 600mg of Gabapentin 3 times a day and 20 mg Citalopram once a day and have been for 9 months. I do not take any other medications.

Blessings to all of you and I hope there is a cure some day. I intend to keep looking for solutions that do not require medications!

Interested in more discussions like this? Go to the Neuropathy Support Group.

vinran | @vinran | Nov 20, 2022
In reply to @hotfeet "I discussed this treatment with a doctor this week. 1. It is not covered with insurance..." + (show)
@hotfeet

I discussed this treatment with a doctor this week.
1. It is not covered with insurance at this time.
2. It takes several 20+ treatments consecutive daily to begin to see results. cost/ treatment 100-165 ea.
3. First step is to determine the cause of your neuropathy so it does not continue. I've had many tests in past, Mayo Clinic in 2019 but no conclusive reason. The tests recommended are expensive urine tests for toxins and heavy metals. GPL tox & Chelation for metals. These would be a starting point for my individual case of Idiopathic PN. I would recommend that anybody interested in such, consult with a medical doctor that has proven success with PN treatment. Most neurologists are administering pharma treatments and supplementation that did not work for me. I hope to see results of testing and will post in future. All the best to you!

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Good luck, will look for your results.
Thanks.
Once

REPLY
lorilee13 | @lorilee13 | Nov 20, 2022
In reply to @pacer3702 "My neurological symptoms began within 2 weeks of the first Pfizer vaccine. However, my first EMG..." + (show)
@pacer3702

My neurological symptoms began within 2 weeks of the first Pfizer vaccine. However, my first EMG at 4 months was "essentially normal". My next EMG at 7 months showed sensory and motor nerve damage, as did two subsequent EMGs. My ANA titer was slightly elevated at 7 months and then increased 4-fold over the next 6 weeks. Thus I appear to have autoimmune-mediated nerve damage triggered by the vaccine. My neurologist agrees. Autoimmune reactions take time to fully develop. Most of the vaccine-injured patients begin to improve around 8 months. I'm substantially better now at 19 months. Most vaccine-injured seem to have small-fiber neuropathy that can't be detected by EMG. I benefited considerably by joining the Neuro V Long-Haulers Facebook group as a source of information. I don't know how I could have navigated this illness without that group.

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@pacer3702

Thank you for your response.
Is there anything you feel has helped you improve, or just simply time?

I started to feel better myself about month 9, and I’ve had a setback/“flare up” a few months ago.

The VERY bad neuropathy is back in my legs again to the point when I walk, it’s obvious to others, due to my legs visibly shaking.

I’ve had a lot of more symptoms worsen as well, but the neuropathy is sure hard to deal with!

Hoping you and all of us get better and one day this will just be a terrible memory!

REPLY
sharka | @sharka | Nov 22, 2022

Anyone tried PEA?
This is review from Amazon - PEA supplements
It helps with my small fiber neuropathy. I have severe pain, usually I rate my pain between 9-10 on the pain scale. This pill knocked down my pain level to 5-8 on the pain scale which is wonderful!! I started taking it one capsule three times a day for 4 days. On day 5 through currently I take it one capsule twice a day. I am amazed that it is actually helping my pain this much. It is Micronized. 3rd party tested so you know it is quality controlled and the real stuff. It is in a veg capsule. Does not taste good if you can not swallow the capsule the first time. I’ve tried a different brand before and it didn’t do anything at all for my pain. I’m thrilled I decided to try this brand. I bought the 180 capsules bottle so it will last me almost 90 days since I took it three times a day for 4 days instead of twice a day that I’m currently doing now. I’m so hopeful that it will continue working as it has been. It’s cheaper if you do an Amazon subscription saves 15% off on 180 capsules bottle. Definitely try it.

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Nov 22, 2022
In reply to @sharka "Anyone tried PEA? This is review from Amazon - PEA supplements It helps with my small..." + (show)
@sharka

Anyone tried PEA?
This is review from Amazon - PEA supplements
It helps with my small fiber neuropathy. I have severe pain, usually I rate my pain between 9-10 on the pain scale. This pill knocked down my pain level to 5-8 on the pain scale which is wonderful!! I started taking it one capsule three times a day for 4 days. On day 5 through currently I take it one capsule twice a day. I am amazed that it is actually helping my pain this much. It is Micronized. 3rd party tested so you know it is quality controlled and the real stuff. It is in a veg capsule. Does not taste good if you can not swallow the capsule the first time. I’ve tried a different brand before and it didn’t do anything at all for my pain. I’m thrilled I decided to try this brand. I bought the 180 capsules bottle so it will last me almost 90 days since I took it three times a day for 4 days instead of twice a day that I’m currently doing now. I’m so hopeful that it will continue working as it has been. It’s cheaper if you do an Amazon subscription saves 15% off on 180 capsules bottle. Definitely try it.

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There is a discussion on PEA here:
-- Palmitoylethanolamide (PEA): Anyone had success?:
https://connect.mayoclinic.org/discussion/pea-success/

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fala | @fala | Nov 22, 2022

Every word of HELP is appreciated. If I get ONE new idea for pain relief, I am grateful. Thanks for putting your helpful ideas out there for us.

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1 reply
selene53 | @selene53 | Nov 23, 2022
In reply to @sharka "Anyone tried PEA? This is review from Amazon - PEA supplements It helps with my small..." + (show)
@sharka

Anyone tried PEA?
This is review from Amazon - PEA supplements
It helps with my small fiber neuropathy. I have severe pain, usually I rate my pain between 9-10 on the pain scale. This pill knocked down my pain level to 5-8 on the pain scale which is wonderful!! I started taking it one capsule three times a day for 4 days. On day 5 through currently I take it one capsule twice a day. I am amazed that it is actually helping my pain this much. It is Micronized. 3rd party tested so you know it is quality controlled and the real stuff. It is in a veg capsule. Does not taste good if you can not swallow the capsule the first time. I’ve tried a different brand before and it didn’t do anything at all for my pain. I’m thrilled I decided to try this brand. I bought the 180 capsules bottle so it will last me almost 90 days since I took it three times a day for 4 days instead of twice a day that I’m currently doing now. I’m so hopeful that it will continue working as it has been. It’s cheaper if you do an Amazon subscription saves 15% off on 180 capsules bottle. Definitely try it.

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Is it allowed for you to tell us what brand you are using? Thank you.

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1 reply
sharka | @sharka | Nov 23, 2022

Brand: Nootropics Depot
From Amazon review, I haven't tried yet

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1 reply
sharka | @sharka | Nov 23, 2022
In reply to @sharka "Brand: Nootropics Depot From Amazon review, I haven't tried yet" + (show)
@sharka

Brand: Nootropics Depot
From Amazon review, I haven't tried yet

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My Dr mentioned, so I googled yesterday

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