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Empty Sella Syndrome

Brain & Nervous System | Last Active: Oct 30 3:21pm | Replies (142)

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@cherrylistic

Hello. I too have a possibility of having this diagnosis. It’s either this or an actual tumor. My symptoms are what caused me to get an MRI done and how it was discovered. Double vision, blurred vision, headaches that became different from the migraines I had been having for years. I’m also experiencing swallowing sides, but I’m told that may be due to the Hashimotos. I also have severe sleep issues. My cortisol levels are off the charts especially at night. I very seldom am ever able to sleep at night, and do most sleeping during the day. I also have horrible fatigue. I was recently diagnosed with Ehlers Danlos and POTS. Almost 20 yrs ago, I received a do of fibromyalgia. I’m a 44 yr old female. Looking to find any and all information I can about this and what others like me have experienced. I appreciate any and all feedback.

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Replies to "Hello. I too have a possibility of having this diagnosis. It’s either this or an actual..."

Hi, @cherrylistic. Welcome to Mayo Clinic Connect. Sounds like you've been through a lot with your health.

Since you've experienced symptoms (double vision, blurred vision, headaches) that led to your MRI and the possibility of the diagnosis of Empty Sella Syndrome, I'd like to invite some of the other members in this discussion to return and offer any thoughts they may have about your situation. Please meet @sdsavage @sherrilynn @dazza333 @rcraftlady @jimmyj. I'd also like you to meet @jenniferhunter and @johnbishop, who may also have some input.

Given your other diagnoses, you may want to check out these other Mayo Clinic Connect discussions, as well:

- POTS https://connect.mayoclinic.org/discussion/auto-immune-diseasehypothyroid-postural-tachycardia-syndrome

- Fibromyalgia https://connect.mayoclinic.org/discussion/fibromyalgia-2/

- Hashimoto's disease and IVIG treatment https://connect.mayoclinic.org/discussion/hashimotos-thyroiditis-and-ivig-treatment

- Ehlers Danlos syndrome https://connect.mayoclinic.org/discussion/possible-ehlers-danlos-syndrome-with-craniocervical-instability

When will you hear more about a definitive diagnosis related to Empty Sella Syndrome, @cherrylistic?