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High platelets, Jak2, ET, and pre-fib new diagnosis

Blood Cancers & Disorders | Last Active: Apr 5 1:49pm | Replies (13)
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@cowestwinds

Hello. I'm 62 and was diagnosed a month ago with Jak2 and ET. Had my bone marrow biopsy last week and it's consistent with ET, no indication of Lukemia or Fibrosis.

My blood count was up to 521 when I started Hydroxyurea and after about 2 weeks it was down to 400. Doing 1000mg a day. Hope to drop that down to 500 sometime. Also doing asprin.

Feel fine. Hope all is well with you. Guess it's something we're going to have to live with.

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Replies to "Hello. I'm 62 and was diagnosed a month ago with Jak2 and ET. Had my bone..."
mortysdad | @mortysdad | Nov 18, 2022

Thank you for sharing. Looks like we are on a similar journey. Please share if anything changes along the way for you.
Blessings, Rick

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eileen11108 | @eileen11108 | Jan 4, 2023

Hi cowestwinds,

I am 78 with ET JAK2. After starting Hydroxyurea 500 mg daily in June 2022 I had daily headaches. I was taken off it for a month while I had some tests done by ENT.

I was then put back on 500 mg of HU every other day. I saw hematologist yesterday, had CBC…platelets went down second month on this regime to 434. So I can continue every other day. I have been on a blood thinner for AFib so have had that protection.

Hope you have a wonderful 2023. Eileen

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