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High platelets, Jak2, ET, and pre-fib new diagnosis

Blood Cancers & Disorders | Last Active: Apr 5 1:49pm | Replies (13)
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@eileen11108

I am surprised you are starting on Pegasys first. From what I have read Hydroxyurea is usually given first. I had to wait a few days for my bone marrow biopsy report. What is pre-fib?

I was diagnosed in June 2022 with ET/JAK2. I had extensive labs and a bone marrow biopsy, My platelets were 621 at start. Hematologist started me on 500 mg Hydroxyurea daily. I started with headaches and had a vertigo attack. I saw ENT and had different tests that were negative. After taking a
short break from Hydroxyurea she put me back on it every other day. Headaches are less and my last labs were great…platelets 498. I am hoping I can continue every other day.

There is also another site that I found. It is healthunlocked.com. You can read others’ experience. It is situated in England but voices are heard from around the world.

Good luck with your journey,

Eileen

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Replies to "I am surprised you are starting on Pegasys first. From what I have read Hydroxyurea is..."
mortysdad | @mortysdad | Nov 18, 2022

Hi Eileen, thank you for sharing your experience. I believe they are starting me on Pegasys because I went from 625- 930 in the last 4 months. Then my biopsy showed signs of pre-myleofibrotic conditions. We did discuss Hydroxyurea but thought it best to go a bit more aggressive. Still waiting to see if drug is approved.
Thank you for the other discussion forum. I will look into that. I'll also post my progress. Hope you can do your every other day treatment and get into a rhythm with that. Blessings, Rick

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