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Empty Sella Syndrome

Brain & Nervous System | Last Active: Oct 30 3:21pm | Replies (142)

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@dazza333

I was diagnosed with secondary empty sella syndrome in 2017, it is probably the result of a head injury in 2015, after the head injury, about 2-3 months I started getting extremely fatigued, memory problems, lost words, no libido, ED, moody, irritable. I saw my doctor for a bad chest, he looked at me and said he would take some blood as I looked "knackered", I was not producing LH nor FSH and as such no testosterone, he then referred me to an endocrinologist who following an MRI started me on IM HRT which is struggling to get my numbers up but I'm told to be patient. The MRI showed that the anterior portion of my pituitary gland had been torn from the stem. My endocrinologist and CNS say that my symptoms are nothing to do with secondary empty sella, however, all of the evidence I read from other ESS sufferers is almost identical symptoms. I think the Drs are really not aware of the damage this syndrome causes. I have not felt like me since before my head injury, I think that guy has gone. I'm due a full head MRI this week to check for further brain injury as the first MRI was just pituitary specific. I've had loads of support from the pituitary foundation in UK and Headway Brain Injury Foundation.

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Replies to "I was diagnosed with secondary empty sella syndrome in 2017, it is probably the result of..."

@dazza333 any update from the full head MRI? Look forward to hearing more about what you find out.
I thought you might also be interested in joining this discussion on Connect:
- Adult Life after a Traumatic Brain Injury (TBI) https://connect.mayoclinic.org/discussion/adult-life-after-a-tbi/

Hiya, I'll be getting results from MRI on Friday next week so will keep you posted and I'll look in on Traumatic Brain Injury thread. Thank you.

My original MRI revealed Secondary Empty Sella Syndrome my second MRI has revealed frontal and occipital lobe Small Vessel Disease "probably as a result of more than one previous head injury" according to CNS, apart from 2015 head injury I was a rugby player having had multiple concussions so this new information makes sense.

Hi Dazza, I encourage you take part in the brain injury discussion as mentioned above.
You may also be interested in the small vessel disease discussions in the Stroke & Cerebrovascular Diseases group https://connect.mayoclinic.org/group/cerebrovascular-diseases/

For example:
Small vessel Ischemic disease
Small vessel ischemic disease plus epilepsy and migraines
Small Vessel Disease in the Brain & Cavernous Malformation