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← Return to Empty Sella Syndrome
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I received the empty sella dx while getting a workup for intractable headache. After several years and a multitude of tests and doctors visits, etc, I have finally started getting some answers. I was finally dx with Intracranial Hypertension, which they say has caused the empty sella in my case. Later today, I will have an MRV/MRA to see if the can find a cause for the IH. (Clot, DAVF, etc.) if no cause is found, they will be installing a shunt. The best recommendation I can give anyone who is experiencing severe headaches and blurry/double/loss of vision is to go see an Opthamologist, and ask them to check your optic nerves for swelling. After many many years, that is what finally made them start taking me seriously. Best of luck to each of you in your search for answers!
P.S., I have also been diagnosed with MTHFR, along with a host of other related issues. Interesting coincidence, or clue? Things that make ya go hmmmm.
Replies to "I received the empty sella dx while getting a workup for intractable headache. After several years..."
Have your doctors discussed with you instead of getting a shunt to have stents placed to open up the stenosis of your transverse sinus? It is A LOT less invasive and has a overnight stay and only a small incision in your groin where they go in with a catheter to place the stents in your brain. I've been diagnosed with IIH/PTC for 5 years and researched like crazy and joined all the groups i could find on FB. There are about 8,000 of us world wide now. I had my stents placed in January of this year and it is SO much better! I'm slowly regaining my life back. Will be thinking of you!
I seen an optomologist and he said there is no optic nerve damage. Should I worry about intercaranial pressure then??? Or no?? I was told if there is no damage to the optical nerve then there should be no intercaranial pressure
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@jes078 I'm an IHer too! I'm in several of the groups on social media where we can all instantly talk and ask questions. I've been diagnosed for 5 years now and the IH community has grown all over the world.