I am 68 and was diagnosed with Prostate cancer at 67. Initial PSA was 44. My Gleason score was also 9 however and it was determined that the cancer spread to my lymph nodes. Next, I had a RP as my prostate was encased by a cancerous tumor. Following that procure I went through 35 treatments of external beam radiation. I am on lupron with zytiga and praying for a positive future.
Mine was 5.53 with Gleason Score of 3+4. I have had two PSAs since under active surveillance and they were 4.65 and 4.98. My Decipher test indicated that I am a candidate for active surveillance in the low to intermediate risk. Cancer found in HALF of the biopsy samples (6 out of 12). I attempted to get 28 proton therapy treatments at John Hopkins in DC but the urologist messed up my hydrogel placement and I got an infection that prevented immediate start of the treatment. I am waiting to see how long I should wait till the damage to the rectum is healed.
Age 72: PSA 4.2, 6 out of 12 biopsies with Gleason scores of 3+4. A year later, at the time of surgery, my PSA was 4.3. The surgeon also took 8 lymph nodes samples; unfortunately, results showed a Gleason score of 7 in one lymph node. Since my surgery, I’ve had my PSA level checked every three months, for the past 10 months. It has been undetectable. While I could have had radiation and hormone therapy to address the lymph-node problem, I chose active survival. This plan put me on a Mediterranean diet coupled with lots of exercise. So far it’s been working. Hope this helps you.
2013 I had a psa of 7.4 at age 53. RP, Gleason 9 cancer did start outside of prostate, but no spread to Nodes nor semi-vesicles. Recurrence of .02 in late 2021, underwent radiation and 6 mos Orgyvx early 2022. PSA undetectable after treatment (<.02). PSA retest due 1/23.
2013 I had a psa of 7.4 at age 53. RP, Gleason 9 cancer did start outside of prostate, but no spread to Nodes nor semi-vesicles. Recurrence of .02 in late 2021, underwent radiation and 6 mos Orgyvx early 2022. PSA undetectable after treatment (<.02). PSA retest due 1/23.
Hey @natem , just curious if you don't mind sharing, was there any discussion of going longer than 6 mos on the Orgovyx?
My numbers are very close to yours, but, my doctor hasn't specified a length of time on the ADT meds. I'm going to try to pin him down at the next appt. Just curious if there was any discussion on that decision process.
Yes. My Oncologist suggest I take in combination with my radiation, he said it improved the results/odds. Initially I was reluctant to take it, but upon his further explanation I advised I would whatever he recommended. Towards the end of my 6 month of being on it, the pharmacist called and said I had another refill if I wanted it. I explained my doctor advised me 6 months. She said it's here if I wanted it. I contacted my Oncologist and he said "no" and was glad I asked him. The medicine costs around 4k-5k a month, but my insurance covered it. I don't understand why they offered to give me a refill, my doctor only prescribed 6 months.
I believe they have to prescribe it in such a way as to try and not let the cancer become resistant to it, which I understand eventually happens.
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Initial PSA was 72
Biopsy shows Gleason score 9-10 Grade Group V
Now PSA is 37
Age 68 Initial PSA was 72
Biopsy shows Gleason score 9-10 Grade Group V
Now PSA is 37
Thanks for sharing. I feel having a positive outlook helps and to trust the science.
Good luck going forward.
Mine was 5.53 with Gleason Score of 3+4. I have had two PSAs since under active surveillance and they were 4.65 and 4.98. My Decipher test indicated that I am a candidate for active surveillance in the low to intermediate risk. Cancer found in HALF of the biopsy samples (6 out of 12). I attempted to get 28 proton therapy treatments at John Hopkins in DC but the urologist messed up my hydrogel placement and I got an infection that prevented immediate start of the treatment. I am waiting to see how long I should wait till the damage to the rectum is healed.
6.5 psa original, then 6.4, then 9.2 at 3 month intervals
Age 72: PSA 4.2, 6 out of 12 biopsies with Gleason scores of 3+4. A year later, at the time of surgery, my PSA was 4.3. The surgeon also took 8 lymph nodes samples; unfortunately, results showed a Gleason score of 7 in one lymph node. Since my surgery, I’ve had my PSA level checked every three months, for the past 10 months. It has been undetectable. While I could have had radiation and hormone therapy to address the lymph-node problem, I chose active survival. This plan put me on a Mediterranean diet coupled with lots of exercise. So far it’s been working. Hope this helps you.
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2 Reactions108 at age 88, now 3.1 after 28 days biscalutamide folliwed by Lupron Depot 3 month. Due for next shot Dec 7.
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1 Reaction2013 I had a psa of 7.4 at age 53. RP, Gleason 9 cancer did start outside of prostate, but no spread to Nodes nor semi-vesicles. Recurrence of .02 in late 2021, underwent radiation and 6 mos Orgyvx early 2022. PSA undetectable after treatment (<.02). PSA retest due 1/23.
Hey @natem , just curious if you don't mind sharing, was there any discussion of going longer than 6 mos on the Orgovyx?
My numbers are very close to yours, but, my doctor hasn't specified a length of time on the ADT meds. I'm going to try to pin him down at the next appt. Just curious if there was any discussion on that decision process.
-
Like -
Helpful -
Hug
1 ReactionHi Web265,
Yes. My Oncologist suggest I take in combination with my radiation, he said it improved the results/odds. Initially I was reluctant to take it, but upon his further explanation I advised I would whatever he recommended. Towards the end of my 6 month of being on it, the pharmacist called and said I had another refill if I wanted it. I explained my doctor advised me 6 months. She said it's here if I wanted it. I contacted my Oncologist and he said "no" and was glad I asked him. The medicine costs around 4k-5k a month, but my insurance covered it. I don't understand why they offered to give me a refill, my doctor only prescribed 6 months.
I believe they have to prescribe it in such a way as to try and not let the cancer become resistant to it, which I understand eventually happens.