Anyone tested for Epstein-Barr virus (EBV)?

rsfcowgirl, most long haulers have very very extreme exhaustion. It's the most common symptom, other than brain fog. You're definitely not alone in that, and I would advise you to NOT over-extend yourself in any way, if possible. The protocol I mentioned WILL treat fatigue. The B-3 especially (niacinamide). It's simply a matter of getting the right nutrients back into your system. Your blood work will come back normal -- as it does for most of us -- but it's really not a neurological issue...

And I only share this because thousands of people are going to specialists, spending hundreds, if not thousands of dollars, and still not getting real answers. CT scans, MRI's, all kinds of tests... will not help you get clarity on this. If you join the Facebook long-haulers group, with thousands of people around the world, you will see stories like that everywhere -- people spending their life savings -- when really a few supplements might do the trick. It seems hard to believe but it is true. And I'm sure you do have an excellent neurosurgeon. I wish you all the very best!!

I sense your concern and kindness and thank you for your support and compassion. So many of us who have been injured by viruses or the thousands who have been Covid vaccine injured, of necessity, have become sensitive to what works and what is not helpful. We, the injured, are writing history because the docs are facing so many unknowns. We have the best data if something is working, an awareness that we feel better because...and the pool of shared information is growing. In rural Oregon, where I was living when I contracted the SARS infection that took me from mddle aged at 87 to old age at 88, I could not get my prmary doc to return my many phone calls, during which I would have asked for help. That experience shifted the burden onto me to find solutions, and these support groups are amazing resources. Also, a fair amount of trial and error with my own research. But with so many parts of me infected or misfiring, and two of my autoimmune diseases requiring opposite treatments, my progress is slow, and that's OK, as long as there is progress. Medicating myself is like playing a fine delicate instrument. To add an inescapable complication, I am living with my son who was resposible for my SARS infection, so he has gone ovrboard in trying to protect me. My food is all ordered from the outside, served by my son, which is different from how it was when I was living on my own, in a big beautful house, doing my own shopping and cooking, despite my health problems. Yes, if anything, I am a warrior, a PhD retired psychologist and artist. on a scale of 1 to 10 in independence, I'm an 11. SO, I won't be giving up, and can somehow sense if something is going to be helpful. I sense your protocol will be helful, but time will tell. Thank you again for caring.

The histamine blockers being used for long-haul treatment are over the counter, like Pepcid AC (H2 blocker) and Claritin (H1 blocker)--not prescription strength. I don't know if that makes a difference in contraindication in seniors, as you mention? I've never heard about the contraindication before, nor seen it mentioned on other message boards. Do you know the reasoning behind it, in seniors?

This is a really good explanation for why the histamine blockers work, as many people with long haul have symptoms very similar to MCAS (mast cell activation syndrome) - https://hoffmancentre.com/treatments-for-lowering-histamine-and-reducing-mcas-symptoms/ & https://hoffmancentre.com/treatments/mcas/

I sense your concern and kindness and thank you for your support and compassion. So many of us who have been injured by viruses or the thousands who have been Covid vaccine injured, of necessity, have become sensitive to what works and what is not helpful. We, the injured, are writing history because the docs are facing so many unknowns. We have the best data if something is working, an awareness that we feel better because...and the pool of shared information is growing. In rural Oregon, where I was living when I contracted the SARS infection that took me from mddle aged at 87 to old age at 88, I could not get my prmary doc to return my many phone calls, during which I would have asked for help. That experience shifted the burden onto me to find solutions, and these support groups are amazing resources. Also, a fair amount of trial and error with my own research. But with so many parts of me infected or misfiring, and two of my autoimmune diseases requiring opposite treatments, my progress is slow, and that's OK, as long as there is progress. Medicating myself is like playing a fine delicate instrument. To add an inescapable complication, I am living with my son who was resposible for my SARS infection, so he has gone ovrboard in trying to protect me. My food is all ordered from the outside, served by my son, which is different from how it was when I was living on my own, in a big beautful house, doing my own shopping and cooking, despite my health problems. Yes, if anything, I am a warrior, a PhD retired psychologist and artist. on a scale of 1 to 10 in independence, I'm an 11. SO, I won't be giving up, and can somehow sense if something is going to be helpful. I sense your protocol will be helful, but time will tell. Thank you again for caring.

Hi. Thanks for your info sharing. I don't participate in FB. To be clear, I take supplements of a broad variety. Do happens my blood work showed elevations in eosinophils+ other biodefensive responses. I have a neuro focus in this bc of new properly done human studies recently pointed to the primary motor cortex+ sensory cortex as the organ+ location in brain where the viruses I'm subjected to are believed to lodge and dwell, creating most, if not all, of the neurological symptoms associated with the neuro long Covid. The RNA at the least from CV cross the blood brain barrier and lodges in the brain in the 2 (adjacent) areas. The vagus nerve is resultantly also greatly effected. So Vagal simulation for symptom control is also a strong element of the medical views I happen to agree with + want to follow. This is in addition to supplements. This deals with the virus itself in the body which is not neutralized by the body's defenses for an extended period. Some of the likely target prescription drugs for this in the US require on-label prescribing ( active viral infection) plus emergency use authorization. This prevents a Dr from prescribing these for Long Covid. However, one or two high level academic medical institutions are holding resurrec research clinics using these medications but they just started. And it's not open to the general public. I would like my neurosurgeon to attempt to set me up for receiving these on a research basis, if possible.
Blood brain barrier penetration is essential to target the virus in the brain. This is the challenge.
Glad for you regarding your recovery. Thanks for sharing with us. Stay well.

Hi. Thanks for your info sharing. I don't participate in FB. To be clear, I take supplements of a broad variety. Do happens my blood work showed elevations in eosinophils+ other biodefensive responses. I have a neuro focus in this bc of new properly done human studies recently pointed to the primary motor cortex+ sensory cortex as the organ+ location in brain where the viruses I'm subjected to are believed to lodge and dwell, creating most, if not all, of the neurological symptoms associated with the neuro long Covid. The RNA at the least from CV cross the blood brain barrier and lodges in the brain in the 2 (adjacent) areas. The vagus nerve is resultantly also greatly effected. So Vagal simulation for symptom control is also a strong element of the medical views I happen to agree with + want to follow. This is in addition to supplements. This deals with the virus itself in the body which is not neutralized by the body's defenses for an extended period. Some of the likely target prescription drugs for this in the US require on-label prescribing ( active viral infection) plus emergency use authorization. This prevents a Dr from prescribing these for Long Covid. However, one or two high level academic medical institutions are holding resurrec research clinics using these medications but they just started. And it's not open to the general public. I would like my neurosurgeon to attempt to set me up for receiving these on a research basis, if possible.
Blood brain barrier penetration is essential to target the virus in the brain. This is the challenge.
Glad for you regarding your recovery. Thanks for sharing with us. Stay well.

As far as viral healing goes, to my knowledge it's not possible. There are thousands of viruses in the world and hundreds (if not thousands) that exist in our bodies all the time. So, as far as I know, the best thing we can do is keep our body in balance (physically, mentally, emotionally), to keep the virus' from flaring up. Is that your understanding, also?

It would be wonderful to target the virus where it resides, for instance in the brain as you mentioned, but that won't ultimately heal us completely, will it? That's why I always come back to diet, routine, stress reduction etc. But anything else you can share on this is appreciated!

Yes I was, however they found it after. They tested and said I am no longer infectednwith the virus and I am now immune to it.