Food Intolerances

Posted by dixzeland @dixzeland, Nov 9, 2022

Just wanting any feedback about my illness. I’ve had my particular illness for 13 years without a proper diagnosis by ANY doctor.

Whenever I eat certain foods or come in contact with chemicals either by airborne or skin contact I get deathly ill like I have the flu.

I am weak, dizzy, brain fog, nausea, headaches and sweating. This can last a few hours to a week. It’s like I’ve been poisoned.

Has anyone ever experienced such a thing? I have seen 3 allergists to test for MCD but it is negative.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Absolutely!…..I have it….Mast Cell ActivationSyndrome. MCAS is everything you described and relentless without intervention. Great doctors in this area to follow, Dr Becky Campbell , Dr Beth O’Hara although there are so many more. They have the diets to follow and protocols for healing. I used supplements designed by them to reset my body’s chemistry. They, and many others btw, MANY…….will give you the diets to follow and when you veer off you get exactly what you live with daily. Mine was brought on by a lot of bug bites, when I moved , as well as really getting bad after each of the covid shots. I was not recuperating very well and getting depressed , and I went back to my roots of eating according to my blood type actually. I am O, which originated with meat eaters, so I did an extreme carnivore diet for a number of weeks because I felt so much better after just a few days. Shockingly better. Then began to get back to the protocol . I had the latest shot and sunk back to fluish and brain fog again, returned to carnivore for two weeks, recovered and now returning to more plant based . Doing well. I eliminated all dairy, gluten, and of course sugar and anything that turns to sugar. But it was the carnivore diet that saved me with each bout, without question. Eat Right 4 Your Type is a book I’ve been using for 20 yrs. I also have Ehlers Danlos Hypermobility and 40%of the folks who have this have MCAS. Best of Luck! This can end!!!

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Hi @dixzeland, I hope you saw the helpful post from @terrirussell. You might also be interested in the information in these possibly related discussions:
- IBS sufferers – MRT and LEAP https://connect.mayoclinic.org/discussion/ibs-sufferers-mrt-and-leap/
- Has anyone had the LEAP-MRT Food Reaction Test? https://connect.mayoclinic.org/discussion/allergies-leap-mrt-food-reaction-testing-has-anyone-heard-of-this-test-it/

For reference see this Mayo Clinic Q and A: Testing for food allergies and sensitivities: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-testing-for-food-allergies-and-sensitivities/

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@terrirussell

Absolutely!…..I have it….Mast Cell ActivationSyndrome. MCAS is everything you described and relentless without intervention. Great doctors in this area to follow, Dr Becky Campbell , Dr Beth O’Hara although there are so many more. They have the diets to follow and protocols for healing. I used supplements designed by them to reset my body’s chemistry. They, and many others btw, MANY…….will give you the diets to follow and when you veer off you get exactly what you live with daily. Mine was brought on by a lot of bug bites, when I moved , as well as really getting bad after each of the covid shots. I was not recuperating very well and getting depressed , and I went back to my roots of eating according to my blood type actually. I am O, which originated with meat eaters, so I did an extreme carnivore diet for a number of weeks because I felt so much better after just a few days. Shockingly better. Then began to get back to the protocol . I had the latest shot and sunk back to fluish and brain fog again, returned to carnivore for two weeks, recovered and now returning to more plant based . Doing well. I eliminated all dairy, gluten, and of course sugar and anything that turns to sugar. But it was the carnivore diet that saved me with each bout, without question. Eat Right 4 Your Type is a book I’ve been using for 20 yrs. I also have Ehlers Danlos Hypermobility and 40%of the folks who have this have MCAS. Best of Luck! This can end!!!

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I agree about the carnivore diet. I've written several times about food intolerances. I have a fructose malabsorption which encompasses everything from sugars to fruits and many vegetables. When I go carnivore I do feel better and loose a few pounds while I'm at it. We are made to believe that fruits and vegetables are essential but they are not! They can ferment in the upper intestines and cause many problems, with me it was increased blood sugars, severe acid reflux, gas, and many other problems!

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Absolutely right! But you stated it much more concisely! The very few protein rich legumes allowed on a Mast Cell protocol would not suffice me at all and I feel more sluggish each day I continue that. I actually have flares if I don’t eat enough meat!…..my husband was told to move to a vegan diet to curb his heart disease and avoid surgery. I tried to keep with him a few days and ended up sick with a bad flare. Pulled the beef out and ate! I am already feeling better!. So many are afraid to say that yes, meat can be the only answer for some and thats ok!!!

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