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Cirrhosis of the Liver: What to expect when waiting for a transplant?
Transplants | Last Active: Aug 16, 2023 | Replies (104)Comment receiving replies
Hello , I have been diagnosed with liver cirrhosis in June, 2021. In August , this year I was told that my cirrhosis has progressed to a stage 4 , but my #s are too low to be added to the transplant waiting list . In the meantime I have developed a innguinal hernia on my left side . I have seen a general surgeon at end of June , 2022 . I was told that it cannot be operated on because of my liver condition . Since June , 2022 the hernia has grown to the size of a mini football . Now it affects other functions . I am being told that there is nothing else that could be done. I am also going to a large university hospital in my home state . I have followed my doctors advice in all aspects of life . My next hepatologist /liver specialist appointment is @ the end of March , 2023 . I'm affraid I will not make it to that appointment . Any advice ? Thank you , Chris
Replies to "Hello , I have been diagnosed with liver cirrhosis in June, 2021. In August , this..."
That's terrible, so sorry to hear you are going thru that. Without and advice from my Dr.s, I looked into it and decided to completely change what I eat. I only eat fruit, veggies, fish, chicken and a few nuts. I have limited my dairy and I eat plain oats with honey in it. Every since I have cut out all bad sugars, sodium, and any and all processed foods, I feel 100% better. I am hoping this is enough to stop the progression long enough for me to get to the Specialist at the University. I was just put on a Beta Blocker, this should also help. I wish you the best.
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@cs1964, I want to welcome you to Connect. As I understand your message, you were diagnosed in 2021, and now are suffering with both cirrhosis and a large inoperable hernia.
Considering that it is now November, and your appointment is not until March, I advise you to Contact the Hepatologist/liver specialist now, and not wait until March. It is important that the liver specialist is kept informed of any changes in your condition. Does he know of your current status?
Here is a discussion where you will find other liver patients who have discussed their hernia experiences.
Incisional hernia after transplant: Anyone else?
https://connect.mayoclinic.org/discussion/incisional-hernia/
Chris, Please contact your liver specialist, do not take the risk of waiting too long. Let me know what you find out.