7% and excessive phlegm

Sally were you ever told to nebulize hypertonic saline? That would help you a lot. Maybe i missed something but i do not see you mention using saline. Airway clearance refers to various techniques used to get the mucus out such as using an Aerobika flutter device and or different positional and coughing techniques or wearing a vest that vibrates to help bring up the mucus. When you have Bronchiectasis you not only loose the ability of normal airway secretions but you also produce a lot more mucus. So you have to use various things to get it out every day usually twice a day. How is the silver helping? It is controversial but some people swear by it. I also have intestinal issues IBS-D or some bacterial imbalance or? I wonder how many people with Bronchiectasis have Intestinal issues also. I believe the two are very connected in my case.

Sally were you ever told to nebulize hypertonic saline? That would help you a lot. Maybe i missed something but i do not see you mention using saline. Airway clearance refers to various techniques used to get the mucus out such as using an Aerobika flutter device and or different positional and coughing techniques or wearing a vest that vibrates to help bring up the mucus. When you have Bronchiectasis you not only loose the ability of normal airway secretions but you also produce a lot more mucus. So you have to use various things to get it out every day usually twice a day. How is the silver helping? It is controversial but some people swear by it. I also have intestinal issues IBS-D or some bacterial imbalance or? I wonder how many people with Bronchiectasis have Intestinal issues also. I believe the two are very connected in my case.

Sally were you ever told to nebulize hypertonic saline? That would help you a lot. Maybe i missed something but i do not see you mention using saline. Airway clearance refers to various techniques used to get the mucus out such as using an Aerobika flutter device and or different positional and coughing techniques or wearing a vest that vibrates to help bring up the mucus. When you have Bronchiectasis you not only loose the ability of normal airway secretions but you also produce a lot more mucus. So you have to use various things to get it out every day usually twice a day. How is the silver helping? It is controversial but some people swear by it. I also have intestinal issues IBS-D or some bacterial imbalance or? I wonder how many people with Bronchiectasis have Intestinal issues also. I believe the two are very connected in my case.

Irene,
I also wonder about the connection with IBS-D, Bronchiectasis and macular degeneration. I think many health issues can be linked to the intestines.
My IBS is pretty well under control. I take Enteragam daily. It is a prescription drug authorized by my naturopath from Transition pharmacy. If I take Enteragam, probiotics and am careful with my diet ( no gluten or dairy), I am in good shape.
I no longer eat raw vegetables. Everything has to be well cooked. After two days in the fridge, food is either put in the freezer or thrown out.

I do not have MAC (as far as I know) but if I did I know the three antibiotics would be impossible for me. I have Bronchiectasis and chronic Pseudomonas. I struggle with other health issues that are preventing me from taking antibiotics and am trying to find out why but thus far Drs have not given me the answers I need. I nebulize 7% saline followed by Aerobika flutter device twice a day. It takes me an hour the first time and maybe 40 minutes the second time.

Hello. I have Bronchiectasis, diaphragm paresis , with FSH muscular dystrophy. Mac degeneration severe in rt eye. Geographic Atrophy. Interesting that you talk about connecting Bronchiectasis and MAc degeneration. So far no doc has linked them other than opining FSH causing diaphragm bi lat paralysis .

I was wondering if I was the only person in the world with the mucus that never ends. I am still spending 5 to 6 hours EVERYDAY doing airway clearance and standing over the bathroom sink and the mucus just keeps on coming. I never seem to get it all out. Twice a day airway clearance with Levalbuterol, followed by 7% saline and sometimes I use 2 vials of 7% one behind the other because of so much think mucus. Percussion Vest and Aerobic and active breathing. I also inhale budesonide when I am not being treated for Oral Thrush. It seems that 3 or 4 consecutive days of budesonide and then bad case of oral thrush, so I stop for about 2 weeks and take the prescription meds, and then try again.
I have explained this to every doctor for the past 2 years and they listen but I don't think they even understand how much it is . Like a faucet not being turned off!!
I am NOT on oxygen at night now AFTER a year of being on it.
I started with CPAP in June. I would have tossed it also if I had kept the same head set and face mask. I changed to a different make and company and now I am able to tolerate the CPAP. No sores on my face and I sleep well at night. It has been a blessing but different head gear and mask made the difference.