Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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rajiv33 | @rajiv33 | Sep 23, 2022

Good night potta 54321
Wow! Hope your keeping a positive mind set despite your situation?
How long did your symptoms started?
Also what triggers your symptoms?
Currently I've been to a lot of doctors and even now I'm still having issues I know I mention my E.N.T specialist said I had allergy but as of recent my symptoms came back and the meds aren't working any more it's been a month now I was taken off everything.
I'm currently doing research and process of elimination and also experimenting with my food intake
And I must say my internal tremors has eased up tremendously so I will post on my results within a month an the progress I have made and what I'm doing because I have reached a point where doctors and specialist having me running test and no results on what's causing these symptoms. Rachel volunteer mentor mention to me about css
When I mention it to my physician team they were like " Mr seulal we have run extensive test and it does not point to css"
So that's why I'm off everything and experimenting " not mad scientist kind of thing "but educated and informative decisions because no doctor thus far knows nothing.
So if my progress works or help in any way possible I will post the process so if it can help someone out there that will be so great
Till then potta 54321
Also I read your previous post with you , thinking it's the covid vaccine
I'm no doctor yet but yes the vaccine has side effects that's not yet listed or still being determined
Now if you said you think your troubles started around that time the vaccine could of brought up an underlying issue that you never knew

katgusman | @katgusman | Sep 24, 2022

In reply to @potta54321 "I have posted about my symptoms just now. You should read what I wrote. I did..." + (show)

I’m so sorry this is happening. Have you tried propranolol?

martinaston | @martinaston | Sep 24, 2022

Hello. There seem to be many of us who experience internal vibrations/internal tremors. From what I have seen, perhaps a third or a quarter of the people who have them got them from either covid or the covid vaccines.

I hope that you are able to recover soon. There are ways to reduce or eliminate the body vibrations that are discussed on the "internal tremors" and "sleep tremors/internal vibrations" facebook groups (the second group is only for people who wake up with the vibrations from sleep, as opposed to 24/7). However, the diagnoses that you will read about in those groups are all over the map. There are so many varying diagnoses out there. I wish there was a single, correct diagnosis, but I don't know what it is. On this MAYO forum, you will hear a lot about Central Sensitization Syndrome (CSS) and the MAYO CLINIC program for CSS recovery, but there seem to be many other diagnoses out there as well. Best of luck! I wish you a swift recovery.

Rachel, Volunteer Mentor | @rwinney | Sep 25, 2022

In reply to @katgusman "I’m so sorry this is happening. Have you tried propranolol?" + (show)

Hi there @rajiv33. I like your positive attitude and awareness of self management in trying to find triggers. Good for you for being your best advocate!

Regarding your doctor's statement, " Mr seulal we have run extensive test and it does not point to css". While I am not a doctor, I know that there are no tests that prove CSS. CSS is diagnosed by process of elimination and the ruling out of other test proving diagnoses.

When the body continues to respond and react in a hypersensitive way, after any acute issue has healed and over 3 months, it's usually considered chronic. From what I understand there are many reasons why the body may experience vibrations, tremors, spasms, etc. and diagnostic testing is imperative.

The importance of understanding CSS, is for when (or if) the time comes where those plethora of other diagnoses have been ruled out and you hit a dead end. The scientific explanation of central sensitization may bring some sort of semblance to the otherwise unknown.

Many doctors are simply not aware or educated on CSS mainly because they have their specialty lane to follow in their field of medicine. That may consist of helping or fixing by surgery, procedure, medication, injection, etc. Once upregulation of the central and peripheral sensory input nervous systems occur, medical treatments typically have shorter lasting effects or don't help at all.

In any event, no, CSS is not always the answer for vibrations and tremors, but it just may end up being the culprit when everything else is off the table. I always feel that knowledge is power. Keep the info in your back pocket so you can stay on top of your game while self-advocating along your journey.

Good luck with your experimenting. I hope you narrow down triggers and find ways to help control your symptoms. 💪 Positivity and hope are your friends. Keep your chin up!

teddi | @teddi | Sep 25, 2022

In reply to @moondusk "Hello, I am new to the group. I really appreciate reading the various stories about the..." + (show)

@moondusk

Hello, I am new to the group. I really appreciate reading the various stories about the development of the internal tremors and what works and doesn’t work. So, thank you for sharing. My story is that I am 69 years old. My internal tremors began four years ago. They were accompanied by tinnitus. The tinnitus sound was similar to holding a conch shell to my ear and hearing that type of noise. So, it wasn’t terribly unpleasant but was annoying. Initially my internal tremors were mild. I had just worked hard on getting my house ready to put on the real estate market. I thought I was just overly tired, etc. Four years later, they have not only continued but progressed. I have them from my head to my toes. They occur all day and everyday. They are not noticeable to others. My muscles on the top of my thighs frequently ache. I can feel a hard lump in my leg. I have also frequently had muscle cramps but mostly on my left leg. Interestingly, all my significant medical conditions occur on my left side (DVT, CVST, Dural Arteriovenous Fistual, pulmonary embolism, lung nodules). My blood tests have come back normal. My EMG was normal. My movement disorder doctor stated there was nothing else they could do and did not have a plan to assist me other than to say if I develop new symptoms to give her a call. One of the neurologists that I saw yelled at me and stated that because I was a mental health therapist I should be able to figure out what the stressor is and manage it. He was sure it was anxiety. There is nothing I find to be more of an indicator of incompetence than when a doctor, therapist, etc, takes one symptoms and leaps to a conclusion. I confidently told him my internal tremors were not caused by stress/anxiety. He stated I didn’t need to see him again but to call him if my symptoms change. I told him I concurred about not seeing him again but would not be calling him if my symptoms changed!

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I feel so bad for you that you were scolded. It is hard enough to cope with the symptoms, adding blame doesn’t help.
I am 75. I have Crohns as well as P.OT.S. Sometimes it is hard to know what is influencing what.
This discussion on Vitamins is very interesting. Because I have had a portion of my small intestine removed due to Crohns, the portion responsible for absorption of nutrients, I am on quite a few supplements. Doctor prescribed Vitamin D and had to increase the dosage in order to make up for insufficiency. I will see at next visit whether the increase did the job. Perhaps that is the cause of my inner tremors. Hopefully it will be that simple, nothing else is😊.
The tremors I feel are similar to the way you feel when you feel like your heart is racing, but your pulse rate is not elevated. It is a interior feeling with no external symptoms. It woke me up. It’s located in the chest cavity mostly, but extends out a bit. It is hard to explain. But it’s like a quivering. It’s a new symptom. Don’t know if it will persist or increase.
Has anyone else had this experience?

tkeyler | @tkeyler | Sep 28, 2022

In reply to @vness76 "This sounds exactly like what I'm going through. Have you gotten any answers?" + (show)

Same with me- any answers yet? I have been to Mayo and awaiting genetic tests

thunderseed | @thunderseed | Oct 23, 2022

In reply to @nikki315 "Yes I had Covid in Nov and have had many different symptoms since my full random..." + (show)

I read that this is a common symptom of long covid unfortunately. I wonder if it would ease your symptoms to get another vaccine

maelias1656 | @maelias1656 | Oct 27, 2022

In reply to @ahannah2021 "I'm alittle annoyed because I went into the doctor for stiffness in the left side of..." + (show)

@ahannah2021 Im having the exact same issue. Have your vibrations gone away? If so, how long did it take? Ever since I got on Paxil. Crazy intense head and face pain. Headaches. Migraines. Vertigo. Dizziness. Confusion. And then my chest and heart always feel like they’re vibrating. I stopped it about 3 1/2 months ago but still going on

ahannah2021 | @ahannah2021 | Oct 27, 2022

In reply to @maelias1656 "@ahannah2021 Im having the exact same issue. Have your vibrations gone away? If so, how long..." + (show)

@maelias1656 hello, I’m sorry ur having to deal with this. Hopefully this helps, my tremors and pain finally did go away but it took about 4 months, unfortunately. I had seen an eye doctor for the pain in my eyes but I was told it cause really bad dry eyes and had meds for that. The only thing that does suck is if I’m asleep and someone wakes me up or I get scared I will feel tremors but it’s very light and it fades within a few mins. I will nvr take those meds again. I hope this helps u and keep pushing forward, u won’t b the same person after but I’ll have some type of feeling normal again I wish u luck

heather1030 | @heather1030 | Oct 30, 2022

Yes, they can be caused from menopause and neurological issues. I have spinal cord damage and I'm menopausal and no doctor for over a year knew what I was talking about when I said that I felt like a had a bees nest in my body vibrating. Finally a neuro did and I was so relieved. He has me on Gabapentin and it is helping a lot. I still get it from extreme heat/cold and if I get very anxious and if I have caffeine or if you drink.
I'm having it today... all day and nothing is helping. If I go for a walk it helps some times...guess I'm going for a walk.
Good luck, I hope you got help.