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Slow degradation of my vision. Seeing a retina specialist
Eye Conditions | Last Active: Jan 19 10:38am | Replies (154)Comment receiving replies
I’ve been getting injections for almost three years. They have kept my eye stabile.
We tried expanding the interval of my injections to 10 weeks but the activity in the retina increased so we are back to 6-7 weeks. I don’t know if this would be seen as prophylactic- I think of it as a maintenance dose.
It has been over time and using OCT every three injectIons or so that we’ve been able to establish the response my eye has to treatment.
I also have geographic atrophy so my vision is slowly degrading. The key word being slowly.
Best of luck! I don’t like getting injections but I do like being able to optimize the vision. I do have.
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Many thanks for more helpful information.
I'm concerned about whether my eyes can be protected at carefully diagnosed intervals (right now it's called " extended intervals""). As I understand it, that means I won't get more injections until leakage recurs as examination indicates (by OCT). What worries me is that such a wait and see approach, would mean permanent damage would have to occur (from the leakage) before they notice it!
Have your injections been determined only after more fluid (under the retina) has shown up at a check up? Or do you yourself call it to their attention based on your noticing reduced vision (for example through noticing more waviness/fuzziness using the Amsler Grid?)
I'm afraid it I wait until they notice reduced clarity, at an OCT exam, permanent damage will already have occurred ( leakage causes irreversible scarring),
Could you please indicate when and why your doctors decide to give you injections? Also, are one or both eyes leaking?
I believe geographic atrophy is a term applied to dry macular macular degeneration, which is not helped by injections. How (if at all) do they treat it?
OCT checkups look for new fluid collection in or under the retina, but without the more detailed imaging through Fluorescein angiography (do you have that test too?)
Also (sorry for the number of questions), where are you being treated? As I mentioned, my area is medically underserved, if anything especially in retinal expertise? I wonder if I am at risk by having too few injections.
Best of luck in your eyes maintaining their visual acuity! This wait and see procedure is nerve-wracking but there seems to be considerable variation in how patients respond.