1. < Chronic Pain

Pain in the butt - Can't sit down

Posted by ecalderman @ecalderman, Nov 21, 2012

I have had very intense pain at my sitz bones for over 7 months and am unable to sit down. when I sit, it feels like I am sitting on two hot pokers or rocks and it is really unbearable. So, I have been standing for seven months. I've been to a couple of spine and pain management doctors, an orthopedist, a chiropractor, a neurologist, an acupuncturist, and a massage therapist. The original diagnosis was ischial bursitis but that ha not appeared on any images. I don't have any issues with any of my lumbar disks. I'm in constant pain even when standing or lying down though those activities do not hurt as much as sitting. Has anyone heard of anything like this before?

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robert88 | @robert88 | Oct 24, 2022
In reply to @lgumerman "Is your pain in the rectum? If so I have a few ideas. I have had..." + (show)
@lgumerman

Is your pain in the rectum? If so I have a few ideas. I have had that pain for a long time but i have relief a couple of ways. I can’t sit for 10 minutes without causing pain.

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Yes I have this problem. It seems unsolvable.

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1 reply
kasie | @kasie | Oct 24, 2022
In reply to @nejohnson "I have the exact same symptoms. CANT SIT!!! Nothing but pain in the butt all the..." + (show)
@nejohnson

I have the exact same symptoms. CANT SIT!!! Nothing but pain in the butt all the way up to back. I have had a PARS defect repaired L5-S1 fused no relief. I have had a tethered cord surgery no relief. I have fasiculations or visual spasms in my butt all the way down to my ankles. Feels like it’s going off like popcorn poping. I had the burning for like 4-5 years. I had the two surgeries in one year. Today Dr wants me to go to neurologist today to see if pain is coming from brain. Don’t know which way to turn anymore. Anybody got any suggestions.

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I think that you need to go to a neurologist also and be tested for CRPS. I have the burning on the whole right side of my body and hypersensitivity. It was caused from surgery. My symphetatic nervous system was damaged, which created these issues.

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2 replies
kenc | @kenc | Oct 25, 2022
In reply to @marye2 "Looked this up and repetitive motion, like sitting alot, bike riding and/or other sports can aggravate..." + (show)
@marye2

Looked this up and repetitive motion, like sitting alot, bike riding and/or other sports can aggravate it. Like most things, stretches can help relieve the referred pain from tight glutes, hamstrings (!) etc. Do get a referral with PT after your next shot. It's the best time to deal with this. Ice packs, bio freeze, lidocaine patches or other topical fixes can help. Maybe a donut or other type of pad would help? https://www.ncbi.nlm.nih.gov/books/NBK482285/

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A Colorectal surgeon advised me that the pain, in my case, is caused by a muscle surrounding the rectum, vagina, lower urinary track, etc. in that area of the body. (I had my colon and rectum removed.) He said that when the muscle tightens it can cause pain. He recommends physical therapy and perhaps a botox shot, when needed, It is a difficult journey trying to find a diagnosis and treatement for the pain.

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marye2 | @marye2 | Oct 25, 2022

Take the shots, so to speak and then try physical therapy. That's the order I've done to relieve piriformis/sacrum, which is not your issue, really. Also, keep in mind that nerves get "annoyed" during surgery and it can take awhile for them to calm down. I think your doctor's idea is great to try first.

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lgumerman | @lgumerman | Oct 25, 2022
In reply to @robert88 "Yes I have this problem. It seems unsolvable." + (show)
@robert88

Yes I have this problem. It seems unsolvable.

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I have had Botox injection the last one in the rectum. Relief for 4-5 months. Amazing relief. Supposed to do PT afterwards then a series of 4-5 injections to solve the muscle memory problem. I also use Compounded Lorezapam recital suppositories, lay down if possible but not always needed, and a heating pad. Fight for these they are worth it. 1mg. Good luck

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1 reply
lgumerman | @lgumerman | Oct 25, 2022
In reply to @kasie "I think that you need to go to a neurologist also and be tested for CRPS...." + (show)
@kasie

I think that you need to go to a neurologist also and be tested for CRPS. I have the burning on the whole right side of my body and hypersensitivity. It was caused from surgery. My symphetatic nervous system was damaged, which created these issues.

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Be sure to see reply above. I also use an inflatable donor for restaurants (lots of horrible metal chairs out there), airplanes, cars, etc. prevents the pain for kicking in in those 10 minutes!!

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2 replies
lgumerman | @lgumerman | Oct 25, 2022
In reply to @lgumerman "Be sure to see reply above. I also use an inflatable donor for restaurants (lots of..." + (show)
@lgumerman

Be sure to see reply above. I also use an inflatable donor for restaurants (lots of horrible metal chairs out there), airplanes, cars, etc. prevents the pain for kicking in in those 10 minutes!!

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Donut not donor.

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lgumerman | @lgumerman | Oct 25, 2022
In reply to @lgumerman "I have had Botox injection the last one in the rectum. Relief for 4-5 months. Amazing..." + (show)
@lgumerman

I have had Botox injection the last one in the rectum. Relief for 4-5 months. Amazing relief. Supposed to do PT afterwards then a series of 4-5 injections to solve the muscle memory problem. I also use Compounded Lorezapam recital suppositories, lay down if possible but not always needed, and a heating pad. Fight for these they are worth it. 1mg. Good luck

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Rectal not recital!!

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lgumerman | @lgumerman | Oct 25, 2022
In reply to @lgumerman "Be sure to see reply above. I also use an inflatable donor for restaurants (lots of..." + (show)
@lgumerman

Be sure to see reply above. I also use an inflatable donor for restaurants (lots of horrible metal chairs out there), airplanes, cars, etc. prevents the pain for kicking in in those 10 minutes!!

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I am sure of my diagnosis. I have muscles in my pelvic floor that are always contracted.

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sickofbeinsick1. AKA Tina | @sickofbeinsick1 | Oct 27, 2022

I’m sorry, I couldn’t resist…I feel your pain, mine started around 6 yrs of age…are you married ? I know…bad taste. I’ve never experienced that, my condolences. I have been in pain & debilitating pain for so lon.
I’ve noticed, I am starting to resent people who can , go out, walk, ride bikes…stuff I can’t remember… I know I did things just like that…even more strenuous?…I ACTUALLY seemed to be getting jealous of MY OWN son! THIS IS NOT normal. I have so much shit going on, I don’t know where to turn, or what to do..other than the obvious! I could imagine not being able so sit! I’m AM sorry for you

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