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Spinal CSF leaks

Spine Health | Last Active: Jun 9 3:23pm | Replies (34)

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@cmweston

I have been having chronic headaches and symptoms for 7 months now. Doctor says i have brain sag and things i have a CSF leak. have had numerous MRIs, a spinal tap, a myelogram and tomorrow a cisternogram. I have had to be off work for weeks now not able to be upright for more than an hour at a time and only once a day if that long. I’m beginning to think i will never be back to functioning. wondering if anyone has dealt with something similar or even not similar at all and just how you deal with chronic situations where you lose hope. TIA

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Replies to "I have been having chronic headaches and symptoms for 7 months now. Doctor says i have..."

Hello @cmweston and welcome to Mayo Connect. Dealing with these types of symptoms for seven months must be very difficult. I can understand your concern. We have some discussions on Connect, which you might find helpful. Here are the links to those discussions:

--Spine CSF Leaks
https://connect.mayoclinic.org/discussion/spinal-csf-leaks/
--Have You Had a Cisternogram?
https://connect.mayoclinic.org/discussion/cisternogram/
@cmweston You mention chronic headaches. Have you had other symptoms as well?