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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: Aug 11, 2023 | Replies (76)
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@rockitman

Good morning, Well I have been diagnosed by Mayo Drs this week and it turns out I have MDS-Low grade.
Not ITP or Megakaryocytic Hypoplasia as previously diagnosed by my Hematologist/Oncologist.
Therefore, I have been taken off Promacta, Prednisone and Rituxan. Mayo has taken over my case.
I go to Mayo Clinic in Jacksonville, Florida on Nov 1st for a bone marrow biopsy. Mayo reviewed my recent bone marrow biopsy but wants to do their own biopsy, which is fine with me.
My new Dr from Mayo ordered a Platelet transfusion for me last Thursday and I went up to 48K from 14K.
I get checked every Tuesday for platelet count and go from there.
Thats all I have for now, more to follow when I know more.

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Replies to "Good morning, Well I have been diagnosed by Mayo Drs this week and it turns out..."
Lori, Volunteer Mentor | @loribmt | Oct 22, 2022

Hi @rockitman. You have to be relieved to have a sound diagnosis and plan joining forward!!
Personally, I’m relieved to know you’re getting regular platelet checks and infusions! Your reserves were getting pretty low. Ok, still no knife juggling but at least now you can relax a little.
Yes on the 2nd biopsy from Mayo. The bmbx (bone marrow biopsy and examination) are incredibly detailed and the equipment used by Mayo is state of the art. Your doctor can ask for specific tests on the cells collected for his purpose. I’m not surprised that a new bmbx is in the offing. And as a veteran of 13 biopsies, my preference is the quick general anesthesia they offer. You’re out about 15 minutes and wake up happy to juice and snack. 😃
That’s for reporting back. When the next biopsy?

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