1. < Post-COVID Recovery & COVID-19

Neuropathy post-Covid infection: Is there treatment that helps?

Posted by erice10 @erice10, Nov 11, 2021

Since having Covid in Jan. of 2021, I have had constant numbness and joint stiffness in my feet. Is there a treatment or therapy to help with this? Is there a study researching this kind of problem in Covid long haulers? I had an ultrasound checking the blood circulation in my legs and everything was fine.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

tulsanicole | @tulsanicole | Sep 17, 2022
In reply to @dp33 "@annt100 @erice10 I got mild COVID in Jan 2022 and neuropathy in my feet and lower..." + (show)
@dp33

@annt100 @erice10
I got mild COVID in Jan 2022 and neuropathy in my feet and lower legs commenced shortly thereafter. Thankfully its not as major as detailed by many on this site who my heart goes out to. To manage neuropathy I have changed a number of things:
- Gave up alcohol
- Gave up caffeine (this had the most impact)
- Taking nerve friendly vitamins and supplements
- increased exercise and make sure I do a walk or exercycle daily

The above has reduced the impact of the neuropathy to about 30% of what it was.

My laymen's interpretation is for some of us COVID causes an inflammatory event (cytokine storm) and this triggers the nerve damage. For me it also caused inflammation in my AC joint - which I damaged in my 20's through sport. Now have arthritis pain in my shoulder. I have hopeful that the nerves repair but know that this may not happen. I had an EMG and only have minor damage on one leg and nerve function at the lower end of normal. But the neuropathy is certainly real!.

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What nerve friendly vitamins/supplements are you taking?

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 17, 2022
In reply to @tulsanicole "What nerve friendly vitamins/supplements are you taking?" + (show)
@tulsanicole

What nerve friendly vitamins/supplements are you taking?

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Hi @tulsanicole, Here's the post by @dp33 that lists the nerve friendly vitamins and supplements they take - https://connect.mayoclinic.org/comment/725746/.

You can also find a complete list of vitamins under the Supplements for Neuropathy section of the document on the Foundation for Peripheral Neuropathy website here:
https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

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1 reply
tulsanicole | @tulsanicole | Sep 17, 2022
In reply to @johnbishop "Hi @tulsanicole, Here's the post by @dp33 that lists the nerve friendly vitamins and supplements they..." + (show)
@johnbishop

Hi @tulsanicole, Here's the post by @dp33 that lists the nerve friendly vitamins and supplements they take - https://connect.mayoclinic.org/comment/725746/.

You can also find a complete list of vitamins under the Supplements for Neuropathy section of the document on the Foundation for Peripheral Neuropathy website here:
https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

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Thank you!

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annt100 | @annt100 | Sep 26, 2022

I had a stabbing pain on my right arm today from the nerve pain and almost had a car accident. My University of Iowa long Covid doctor told me that I have a really serious long Covid issue because I’m losing muscle in multiple areas and is recommending me to go see a neurologist at Mayo Clinic. It has been three weeks already and I haven’t heard anything yet. Please let me know how I could get look at faster at Mayo Clinic. It has been painful and I need help,

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 27, 2022
In reply to @annt100 "I had a stabbing pain on my right arm today from the nerve pain and almost..." + (show)
@annt100

I had a stabbing pain on my right arm today from the nerve pain and almost had a car accident. My University of Iowa long Covid doctor told me that I have a really serious long Covid issue because I’m losing muscle in multiple areas and is recommending me to go see a neurologist at Mayo Clinic. It has been three weeks already and I haven’t heard anything yet. Please let me know how I could get look at faster at Mayo Clinic. It has been painful and I need help,

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@annt100, I'm sorry that it's been 3 weeks and you haven't heard back from Mayo Clinic. If it were me, I think I would give the Mayo Clinic Rochester appointment number a call and check the status or your doctor's referral.

507-538-3270 -- 7 a.m. to 6 p.m. (Central time, Monday through Friday)

You can also try setting up an appointment online here - http://mayocl.in/1mtmR63.

Have you checked with your doctor to verify that they sent a referral to Mayo Clinic?

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2 replies
annt100 | @annt100 | Sep 27, 2022
In reply to @johnbishop "@annt100, I'm sorry that it's been 3 weeks and you haven't heard back from Mayo Clinic...." + (show)
@johnbishop

@annt100, I'm sorry that it's been 3 weeks and you haven't heard back from Mayo Clinic. If it were me, I think I would give the Mayo Clinic Rochester appointment number a call and check the status or your doctor's referral.

507-538-3270 -- 7 a.m. to 6 p.m. (Central time, Monday through Friday)

You can also try setting up an appointment online here - http://mayocl.in/1mtmR63.

Have you checked with your doctor to verify that they sent a referral to Mayo Clinic?

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I’ll check with my doctor. Thank you

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megangreen | @megangreen | Oct 11, 2022
In reply to @jewtea "I am 76 extremely energetic and healthy and take O medications. Following 2nd shot woke up..." + (show)
@jewtea

I am 76 extremely energetic and healthy and take O medications. Following 2nd shot woke up one morning and had extreme pain in both feet with heels struggled with walking. My physician treated me with steroids and pain free for 1 week and it returned. Is this permanent or will it dissipate?

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I know this message is nearly one year old and I hope your problems have now resolved.

In the responses no one seems to have mentioned the possibility of you having developed Plantar Fasciitis which would likely have developed coincidentally to any vaccines.

Oral corticosteroids can relieve PF but certainly doesn’t resolve it until generic or customised shoe supports are implemented.

Aside from severe bilateral Plantar Fasciitis I have Peripheral Neuropathy in both feet and now severe osteoarthritis in the feet and elsewhere…..so I do understand foot pain.

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2 replies
Imactive account. | @lenaybrown | Oct 21, 2022

I'm here looking for answers as I have apparent neuropathy in my feet and jumpy twitches constantly in my calves. Nerve conduction test and mri and physical tgerapy-my Dr is saying he is leaning towards nerve problems due tothe spike protein on Covid. I don't know what to do. My feet feel like blocks of ice, or shooting vibrations with sometimes sharp hot pains .

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1 reply
Imactive account. | @lenaybrown | Oct 21, 2022
In reply to @johnbishop "@annt100, I'm sorry that it's been 3 weeks and you haven't heard back from Mayo Clinic...." + (show)
@johnbishop

@annt100, I'm sorry that it's been 3 weeks and you haven't heard back from Mayo Clinic. If it were me, I think I would give the Mayo Clinic Rochester appointment number a call and check the status or your doctor's referral.

507-538-3270 -- 7 a.m. to 6 p.m. (Central time, Monday through Friday)

You can also try setting up an appointment online here - http://mayocl.in/1mtmR63.

Have you checked with your doctor to verify that they sent a referral to Mayo Clinic?

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Does the mayo clinic take medicaid for insurance?

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Oct 22, 2022
In reply to @lenaybrown "Does the mayo clinic take medicaid for insurance?" + (show)
@lenaybrown

Does the mayo clinic take medicaid for insurance?

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Welcome @lenaybrown, Mayo does accept Medicaid. There are certain conditions that apply and out-of-state Medicaid is not accepted. Here is more information about insurance and financial assistance options at Mayo Clinic.

– Insurance https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance
– Medical Assistance (Medicaid) https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance/accepted-insurance/medicaid
– Charitable Care and Financial Assistance at Mayo Clinic https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

You can also call Patient Account Services toll free at 844-217-9591 to get your specific questions answered.

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