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Help! Anyone with Post COVID get infected again?

Posted by kellyhart @kellyhart, Jun 15, 2022

Hello! Newbie here. Here’s a little backstory:
COVID April 2020
Moderna vaccine Jan-March 2021
COVID May 17, 2022

Other neuro history: concussion July 2020; balance issues and numbness / tingling post pardum in 2008. Tested for MS but nothing showed up.

March of 2021 was the start of me slowly declining. My diagnosis came in the fall after many tests and consults, as a diagnosis of exclusion really, as we were all just starting to hear about long COVID. Cognitive issues, hearing issues, balance issues, ears ringing, sensitivity to heat where it felt like my ears would fill up and I’d get confused/ acted drunk with slurred speech. I got weaker and weaker. Couldn’t drive, I’d hit a few things it was crazy. I’d walk into my daughters volleyball game and get completely overloaded sensory wise and feel as if I was losing my balance. I’d get quiet snd confused. Numbness and tingling. Very very slow processing.

The recovery from COVID again has been scary. I was given the anti viral which helped me recover symptom wise acutely but the fatigue as bd brain fog has been awful. I’m back to work with shorter days and slowly trying to get it together. But now symptoms of last summer are slowly creeping back in. Headaches, ear/ jaw pain, I fell on Sunday. My legs just have out. My legs are burning and weak walking the halls at work. My breathing is a little better but I still have trouble.

I’m trying to get an appointment at a long COVID clinic. This is all so scary. Any tips/ advice?
Since last year I’m on some supplements to boost my immunity. 2 inhalers. 3 medications for heart/ blood pressure. And now I feel like I took one step forward snd 2 steps back.

Has anyone had long haulers twice?
Has anyone experienced it after the vaccine?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Laura Dropps | @ldropps | Sep 19, 2022
In reply to @becky1024 "I’m unable to get the vaccine because of a defective heart. So naturally I’ve been careful..." + (show)
@becky1024

I’m unable to get the vaccine because of a defective heart. So naturally I’ve been careful to wear a good quality mask before I leave my apartment and observe the procedures to stay safe. Guess what, I’ve had Covid 5 times, the 1st, 3rd and 5th were the worst. I’m a long hauler as you can imagine. I lost my taste from #3 and 6 days later, I lost my smell. That was back in March 2022. Then in July 2022, I caught the Covid Variant BA.5 as my 5th case. That thing was nasty, fast, easy to catch and vicious. In less than 2 days, I went deaf in my right ear after getting severe earaches in both ears. My taste, smell and deafness eased up but still active. Now I’m waiting to catch the flu, so I got a maximum dose of flu vaccine. In 2017, after having the flu vaccine also the pneumonia shot 2 months later, disaster struck. Not only did I get the flu, I also ended up with bronchitis and pneumonia. So my poor body was fighting all three bugs at the same time. To this day, you can see on X-rays the damage and scaring in the bottom of my left lung where the battle took place. So I’m always out of breath. The Covid seems to have run its course but the flu season is about to hit. Hope you are feeling well. @becky1024

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@becky1024 Oh, I'm sorry you've gone through so much. I, too have heart issues, but my cardiologist wanted me vaccinated.

Sending Covid free hugs and positive thoughts.

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1 reply
Laura Dropps | @ldropps | Sep 19, 2022
In reply to @kudzu "So what does the long-Covid clinic actually do?" + (show)
@kudzu

So what does the long-Covid clinic actually do?

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@bvw I had tests to see if I had physical damage from Covid and then classes to learn to manage life with post Covid syndrome.

Sadly, no cures

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Laura Dropps | @ldropps | Sep 19, 2022
In reply to @colleenyoung "Laura, my apologies for steering you back to the Post-COVID Care Clinic. I had assumed you..." + (show)
@colleenyoung

Laura, my apologies for steering you back to the Post-COVID Care Clinic. I had assumed you were still in their care, but see that you were transitioned to your primary care physician after completing the PCCC program.

@artistandtwin, your post is so helpful, informative and hopeful. Thank you for all the details.

Laura, it's not too late to consult with your PCP and see if Paxlovid or another antiviral therapy or monoclonal therapy would be appropriate for you.

How are you feeling today?

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@colleenyoung

Feeling a bit better today. A nurse from the Mayo Clinic advised me to keep doing my stretches and breathing exercises.

I feel like I've just gotta let it run it's course. But I will send a message to my primary care doctor.

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bobbyd1017 | @becky1024 | Sep 19, 2022
In reply to @ldropps "@becky1024 Oh, I'm sorry you've gone through so much. I, too have heart issues, but my..." + (show)
@ldropps

@becky1024 Oh, I'm sorry you've gone through so much. I, too have heart issues, but my cardiologist wanted me vaccinated.

Sending Covid free hugs and positive thoughts.

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I was born with a defective heart and bad blood. So 5 of my doctors said not to getting vaccinated with the Covid since it would kill me because the side effects of the vaccine would stress my heart so much, it would, you know. Take care.

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kaitlynottum | @kaitlynottum | Oct 20, 2022

This is my second time having COVID, I had it back in February and it really wasn't all that bad, I was in the ER quite a bit but no hospitalization. I now have it and I'm not sure how to react, for those who have had experience with COVID more than once, does it get worse than the first time?

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1 reply
shawnasierra | @shawnasierra | Oct 20, 2022
In reply to @kaitlynottum "This is my second time having COVID, I had it back in February and it really..." + (show)
@kaitlynottum

This is my second time having COVID, I had it back in February and it really wasn't all that bad, I was in the ER quite a bit but no hospitalization. I now have it and I'm not sure how to react, for those who have had experience with COVID more than once, does it get worse than the first time?

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I had what I believed was Covid back in January but tested negative. In May I tested positive. September 9 I tested positive and got better and a home test two weeks later was negative. This past Monday I tested positive again. Nobody can give answers why I keep getting it. I’m a nurse and take the necessary precautions.

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1 reply
kaitlynottum | @kaitlynottum | Oct 21, 2022
In reply to @shawnasierra "I had what I believed was Covid back in January but tested negative. In May I..." + (show)
@shawnasierra

I had what I believed was Covid back in January but tested negative. In May I tested positive. September 9 I tested positive and got better and a home test two weeks later was negative. This past Monday I tested positive again. Nobody can give answers why I keep getting it. I’m a nurse and take the necessary precautions.

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Oh no, I'm sorry to hear you tested positive. I tested positive on Thursday, I've been reached out to about treatments. I thought I was taking all the proper precautions as well and was supposed to have my first booster today but that's not going to happen. How have things been for you this time around?

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1 reply
shawnasierra | @shawnasierra | Oct 21, 2022
In reply to @kaitlynottum "Oh no, I'm sorry to hear you tested positive. I tested positive on Thursday, I've been..." + (show)
@kaitlynottum

Oh no, I'm sorry to hear you tested positive. I tested positive on Thursday, I've been reached out to about treatments. I thought I was taking all the proper precautions as well and was supposed to have my first booster today but that's not going to happen. How have things been for you this time around?

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I think it’s worse in some ways. I don’t know if it’s a new infection or reactivation and there doesn’t seem to be a lot of understanding about it. I get better then it comes back. My booster is pushed out yet again. Mostly GI issues and fatigue

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karel | @karel | Dec 26, 2022

In september I caught covid. Took around weeks to fully recover. i always tested negative after that. I cant take the vaccine as got anaphalactis from the first pfier. I have many morbidities. im wheelchair bound., wear 2 masks, a kn95 and a regular one over that one. I just go to grocery and back. Now today I tested positive again, seere coughing, chest pain, though xray was negative. Why do I keep getting it. This is crazy.

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2 replies
sunny8 | @sunny8 | Dec 27, 2022
In reply to @karel "In september I caught covid. Took around weeks to fully recover. i always tested negative after..." + (show)
@karel

In september I caught covid. Took around weeks to fully recover. i always tested negative after that. I cant take the vaccine as got anaphalactis from the first pfier. I have many morbidities. im wheelchair bound., wear 2 masks, a kn95 and a regular one over that one. I just go to grocery and back. Now today I tested positive again, seere coughing, chest pain, though xray was negative. Why do I keep getting it. This is crazy.

Jump to this post

This is discouraging, for sure.

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