Chemo for esophagus cancer: Any advice on things I should or not do?

Posted by fracturedd @fracturedd, Sep 5, 2021

I was recently diagnosed with Adenocarcinoma of the esophagus with her2 “positive”. I’ve been on one chemo pill and one infusion. The pills gave me ulcers in my colon along with every other side effect and I ended up in the ICU for 2 nights- 7 night hospital stay. Since then they haven’t started me on the chemo pills again (they said I need a break to heal) so I’m only on the infusion. My follow up pet scan is wed and I’m scared that only being on the one infusion just wasn’t enough. I’m trying to stay positive. Anyone have any advice as far as extra supplements or things I should or shouldn’t do. As of now I’m walking, take curcumin, vit d, acupuncture, cbd oil, that’s really it. Any positive info would be appreciated.

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

@rikardlykling

Yes me too atWatsom cancer in Lakeland Florida may Gods hands be in control.

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Eat slower smaller bits chew better and remember God is in the healing business.

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@dsh33782

This Wednesday I see both radiation and chemo specialists at Moffitt Cancer Centery. I hope to get started soon to try and shrink the tumor in my lower esophagus which is blocking swallowing food.

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Me too I will be praying for you God is more than enough to get us thru

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Did you have the pet scan result?
What stage are you ?
The infusion could be enough - ask your doctor about immunotherapy !
Keep us informed!
Music to relax - and less sugar if possible

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@naomicanada

Did you have the pet scan result?
What stage are you ?
The infusion could be enough - ask your doctor about immunotherapy !
Keep us informed!
Music to relax - and less sugar if possible

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@naomicanada, I believe your questions were directed to Don, I'm tagging him to make sure he sees your post. @dsh33782

How are you doing, Don?

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I am 5 days into chem (2 hours and then 3 days on fanny pack). Very tired and taking zofran for nausia.

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@pellaw

Combination of 5 chemo and 28 radiation treatments with shrunk the tumor (stage 3) to best case outcome. 6 weeks later esopagectomy was performed robotically also with no residual cancer found.

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Where did you go for the robotic surgery? The surgeons I have talked to do robotic for the stomach, open for the esophagus. I am just finishing up chemoradiation and will know results after a PET scan on Dec 14.

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Something I found interesting since you asked about things that might help.

If you find other sources (either supporting, or especially if offering reservations, please share).

Research on Molecular Hydrogen
< Sources supporting the therapy>
(I’m sorry, I tried to edit several times and couldn’t find a way to get the links to play nicely)

Podcast:
https://podcasts.apple.com/ca/podcast/the-life-stylist/id1121467751?i=1000583837914

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6691140/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5731988/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257754/https://www.frontiersin.org/articles/10.3389/fphys.2021.789507/full

•https://www.hindawi.com/journals/omcl/2020/8384742/

•https://pubs.acs.org/doi/10.1021/acsnano.9b05124#

•https://www.sciencedirect.com/science/article/pii/S0163725814000941

•https://www.naturalmedicinejournal.com/journal/going-beyond-hype-hydrogen-water

“Although the research is still in its relative infancy, over 1300 publications suggest that it has potential therapeutic effects in over 170 different human and animal disease models, and in essentially every organ of the human body”: https://www.mdpi.com/2673-9801/3/1/11

https://uwe-repository.worktribe.com/index.php/OutputFile/8264832https://www.researchgate.net/publication/236914565_The_evolution_of_molecular_hydrogen_A_noteworthy_potential_therapy_with_clinical_significancehttps://medicalgasresearch.biomedcentral.com/articles/10.1186/2045-9912-4-17https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8086626/

< Sources discrediting the therapy>

•“Conclusion: Hydrogen water is just expensive water with unproven health claims”: https://sciencebasedmedicine.org/hydrogen-water-is-not-the-new-nutrient-health-claims-are-hype-not-science/

•“Therefore, it can be speculated that the high-flow hydrogen therapy is a regulatory therapy that can restore the damaged immune system to function, but has little effect on the normal immune system.“: https://pubmed.ncbi.nlm.nih.gov/33642332/

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I have been inhaling Molecular Hydrogen at various periods of time since 2016. I will go into detail at a later time. I have several appointments today that are limiting the amount of available time I have today. I strongly urge everyone reading the previous post to do their research. Study each or the links, and make an informed decision. I am an extremely vocal proponent of Molecular Hydrogen, especially what it has done for me. I will post again with my story as soon as I have enough time. I am 85 years young, and quite honestly can not type nearly as fast as I once could.
God Bless
Darol

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@klondikedarol

I have been inhaling Molecular Hydrogen at various periods of time since 2016. I will go into detail at a later time. I have several appointments today that are limiting the amount of available time I have today. I strongly urge everyone reading the previous post to do their research. Study each or the links, and make an informed decision. I am an extremely vocal proponent of Molecular Hydrogen, especially what it has done for me. I will post again with my story as soon as I have enough time. I am 85 years young, and quite honestly can not type nearly as fast as I once could.
God Bless
Darol

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I haven't read much on this... just stuff like this:

Inhaling molecular hydrogen may improve the quality of life and control cancer progression for patients with advanced cancer. In vitro studies have shown that hydrogen treatment can inhibit cancer cell proliferation, invasion, migration, and colony formation. Hydrogen therapy may also improve liver function in patients receiving chemotherapy.

Therapeutic potential of molecular hydrogen in ...
The in vitro study showed that hydrogen treatment significantly inhibits cancer cell proliferation, invasion, migration and colony formation both in Hs38.T and ...

Translational Cancer Research
“Real world survey” of hydrogen-controlled cancer: a follow ...
Sep 23, 2019 — In patients with advanced cancer, inhaled hydrogen can improve patients' quality-of-life and control cancer progression. Hydrogen inhalation is ...

NCBI
Hydrogen-rich water exerts anti-tumor effects comparable to 5-fluorouracil ...
Jan 15, 2022 — For example, studies report that H2 therapy was associated with improved liver function in patients who were administered chemotherapy, as well as reduced side effects for those receiving radiation therapy, and protective effects against radiation-induced bone marrow damage in cancer patients[6-8].

ncbi.nlm.nih.gov
Hydrogen therapy may also reduce side effects for patients receiving radiation therapy. It may also protect against radiation-induced bone marrow damage.
Hydrogen therapy may also reduce inflammatory responses associated with ventilator-induced lung injury. In a study of allergic asthmatic mice, hydrogen gas inhalation improved lung function and protected against airway inflammation.
Hydrogen therapy may also have no common adverse reactions such as nose bleeding, chest pain, nausea, vomiting, dizziness, earache, or skin allergy.

So... where do you fit in with your use of this hydrogen therapy ... in terms of other treatments (combinations)?

Very curious. And, are you stage 4 and have already exhausted all other treatments?

Gary

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@mrgvw

I haven't read much on this... just stuff like this:

Inhaling molecular hydrogen may improve the quality of life and control cancer progression for patients with advanced cancer. In vitro studies have shown that hydrogen treatment can inhibit cancer cell proliferation, invasion, migration, and colony formation. Hydrogen therapy may also improve liver function in patients receiving chemotherapy.

Therapeutic potential of molecular hydrogen in ...
The in vitro study showed that hydrogen treatment significantly inhibits cancer cell proliferation, invasion, migration and colony formation both in Hs38.T and ...

Translational Cancer Research
“Real world survey” of hydrogen-controlled cancer: a follow ...
Sep 23, 2019 — In patients with advanced cancer, inhaled hydrogen can improve patients' quality-of-life and control cancer progression. Hydrogen inhalation is ...

NCBI
Hydrogen-rich water exerts anti-tumor effects comparable to 5-fluorouracil ...
Jan 15, 2022 — For example, studies report that H2 therapy was associated with improved liver function in patients who were administered chemotherapy, as well as reduced side effects for those receiving radiation therapy, and protective effects against radiation-induced bone marrow damage in cancer patients[6-8].

ncbi.nlm.nih.gov
Hydrogen therapy may also reduce side effects for patients receiving radiation therapy. It may also protect against radiation-induced bone marrow damage.
Hydrogen therapy may also reduce inflammatory responses associated with ventilator-induced lung injury. In a study of allergic asthmatic mice, hydrogen gas inhalation improved lung function and protected against airway inflammation.
Hydrogen therapy may also have no common adverse reactions such as nose bleeding, chest pain, nausea, vomiting, dizziness, earache, or skin allergy.

So... where do you fit in with your use of this hydrogen therapy ... in terms of other treatments (combinations)?

Very curious. And, are you stage 4 and have already exhausted all other treatments?

Gary

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I especially suggest getting your hands on the book by Dr. Junji Akagi called “Hydrogen Immunotherapy Makes Cancer Disappear: Advice from a Japanese Authority on Immuno-Oncology about how to Enhance Your Immunity Swiftly and Build a Robust Body.”

There’s also some very interesting podcasts, but aside from the studies, I like to take everything with a grain of salt.

Side-point: A part of the book I found most insightful is the doctor’s recommendation that “the standard of care” (by Japanese standards, anyhow) is not the right approach for advanced cancer patients. He recommends low-dose antineoplastic drugs so that the immune system is preserved to extend the lifespan as long as possible. To be honest, this grabbed my attention so fully that I haven’t read the parts of the book about H2 yet (but I have read some of this doctor’s academic studies on that).

But gee, that’s a whole other can of worms.

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