Vibration, twitch and pain

Posted by tkeyler @tkeyler, Sep 28, 2022

Hi all, recently diagnosed with APS, but having some neuro issues as well and curious if anyone can relate. Began with a clot in kidney in April and have had elevated cardiolipin antibodies for months. However, over the summer I began having fatigue and sore calf/inner thigh muscle, then some mild pain all over. I then developed muscle twitches occasionally as well as tingling. Floaters spontaneously came on in eyes overnight it seemed and now have mild cataracts. As of late, I have also developed an internal vibration or tremor. It is always there but most disturbing at night when awakening. I am currently awaiting some neuromuscular genetic tests after seeing both rheumatology and neuro at the mayo.

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@tkeyler

Honestly, grateful it was anything with treatment. Fairly bizarre, but will hopefully be able to turn this around a bit. Got the genetic report on Sat and still waiting to hear from my doc.... messaging them now. Would obviously like to start treatment ASAP

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Will you please check back in to let us know how you make out with a treatment plan?

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