1. < Diabetes & Endocrine System

Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what's happening when the episodes happen. So far my doctors are clueless.

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valeriebhreathnach | @valeriebhreathnach | Oct 11, 2022
In reply to @doxyjune "Hi I also have internal shakiness but I call it electricity. Not sure if we have..." + (show)
@doxyjune

Hi I also have internal shakiness but I call it electricity. Not sure if we have the same symptom. I have it in my legs (calves) bad and over the last few years in my hands. It gets much worse if I don't sleep well. I also need pain killers for it as the vibrations don't stop and the shakiness is also painful after I start feeling it for 5 minutes. Nothing else has helped me. I am also hypothyroid. It was also spreading to the bottom of my lumbar. I had that for a week and I did read on line that there is not enough calcium in your body and the nerves are not connecting and can cause this tremor. This person recommended taking Tums - since I was desperate for it not to be in another spot in my body I did take Tums , the first 2 weeks every day just 2 or 3 at the most. And believe it or not that stopped the vibrations in my lower back. Who knows? I now take Tums about 3 or 4 times a week to make sure, if they are helping to stop this weird electricity, that I have enough calcium in my system. Maybe it is part of a calcium issue? NO dr. in 20 years has any idea why this happened but it happened to me at the exact same time my thyroid went. I am sorry that this is going on at only 28, but maybe the Tums might help you.

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Hi I was also plagued with this type of shock in my head and chest which kept me awake most of the night. After reading what you wrote about calcium I decided to give it a go. Within 2-3 days this 'shocking had more or less disappeared as had the horrible pain and restlessness in my legs. For the past 6 months I've been sleeping like a log and actually feel better now than I've done in the last 10 years. Many thanks to you.

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littlecrown1966 | @littlecrown1966 | Oct 11, 2022

What blood panels have they done? I am sure probably ones for your thyroid....i have similar symptoms pre my cancer diagnosis...not to scare...but went mis diagnosed for a long time....maybe check for calcium levels in the blood, calcitonin, and serotonin? I experienced these same symptoms when having what was called a serotonin storm....which also caused my bp to rise, and horrible headache....thyroid issues can bring on many hormonal fluxuations and imbalances....i would definately let your endocrine doctor know....

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littlecrown1966 | @littlecrown1966 | Oct 11, 2022

What medications are you taking? Anything that may raise your serotonin levels, or that combined might raise these levels? Here is some info to check into...i am not a doctor....just sounds similar to some episodes i was having as well, and when i went to ER a few times before they discovered my serotonin levels were too high, could have been med induced or other....but here is info on it, and at any rate would make sure if you suspect thyroid issues, or already have an endocrine doctor to let them know....
https://www.mayoclinic.org/diseases-conditions/serotonin-syndrome/symptoms-causes/syc-20354758

REPLY
1 reply
littlecrown1966 | @littlecrown1966 | Oct 11, 2022
In reply to @blulilbaby "I used to have the horrid night sweats and heart palpitations too. I take a heart..." + (show)
@blulilbaby

I used to have the horrid night sweats and heart palpitations too. I take a heart regulating med called Metoprolol. I had the tilt table test at Mayo and they said I had POTS (Postural Orthostatic Tachychardia Syndrome) meaning when I adjust posturally my heart rate changes. I had the dizziness to the point where I would actually have to catch myself to keep from falling as well. Ever since I have been on the med I haven't had any issues at all. My night sweats stopped when I got on a good dose of Thyroid medication. It is a good sign for me to pay attention to because if it starts again I know my meds are off and to go see my Endocrinologist to check my levels. A random doctor that wasn't even mine stopped to look at my chart one day and asked if I had been tested for Graves. That sent me to an Endocrinologist (The only specialty I had not seen) and he ran the specific blood tests for Graves, Addisons, and Hashimoto's. I swear when I went back for the results and he said I 100% had Hashimoto's I stood up right there and did the dance of joy that I had a disease! Because it turns out I wasn't imagining things or faking symptoms. It finally had a name and if it had a name I could do something about it before it killed me. A regular thyroid level will not show you whether you have it or not. You have to test specifically for those three things. SO see an Endocrinologist and when you make the appt ask if they specialize in Graves or Hashimoto's. It makes a difference. If you have it you will start on meds that will take a little adjusting to get a good level to control everything that is happening but I swear there is an end game!.I can go outside in the daytime without dying in minutes from heat intolerance. I can work a part time job now instead of being home bound. I sleep an entire night through without waking up. I haven't fallen or had a significant dizzy spell in almost 2 years. My heart palpitations have stopped completely.Removing the thyroid is NOT for everyone. If you have HD it can be managed with medication. Mine had just been undiagnosed and active for 7 1/2 years so there was just too much damage to almost everything inside my body for me to be able to manage it with just meds. I wish you luck! I don't hope that you have HD but I hope that you have HD, (You understand that. ) Most people do not know this but your Thyroid LITERALLY tells every cell in your body what to do so when it is broken everything goes haywire in your body. If it gets to the point of removal I can point you to the best doctor at Mayo in Jacksonville, Florida, to do it. He has done more than 2500 Thyroidectomy's and is the chair of the department. I went to the top guy and I am so glad that I did. It could not have turned out to have a better result for me. First step you have to go see an Endocrinologist to have the blood test. The results can literally change your life.

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Yes it is so crazy amazing at how much the thyroid, petuitary, and hypothalmus all work together to orchestrate almost every function in the body, and if it is off in any sort of way...your whole body is off, i was same way, everything got undiagnosed or mis diagnosed for so long....i was given meds for anxiety and depression and i had never struggled with that my whole life!! I was treated like it was all in my head....i know exactly what you mean....super odd to rejoice at having a positive diagnosis for something....but it is finally such a relief when they find out what is really going on, and that you are not insane, and you can finally get the care you need! I think a lot of people go through this...and especially as we age...and that ol thyroid gets disfunctional....like even changes our metabolism...you can try every diet to lose weight...and people do not realize it could be a thyroid issue...for me it was a cancer issue...medullary thyroid carcinoma....one whole year misdiagnosed....but caused my thyroid to be out of whack...and was relieved to finally get a diagnosis for anything!! Because i knew what was going on in my body was not normal....now i have active NET's....which are tumors or cancer nodules that produce all sorts of hormones like a thyroid....things can get pretty out of whack...i have no thyroid as it has been removed, but do well with my thyroid meds....and the neuro-endocrine cancer is an ongoing battle of which i have just gotten all scheduled into Mayo for new assessment....but i am super glad you were able to get your issue figured out, and could get the treatment you needed...i think every adult should have their thyroid function checked....and with our American diet....and all the hmo's i know some adolescents struggle with thyroid issues too like my grandson who also has hashimoto's. I wish you the best in your treatment!!

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krcc | @krcc | Oct 12, 2022

My hypothyroidism is well controlled and I have internal tremors daily. My doctors do not believe that is the cause but do not have an alternative or definitive answer. They do think it is nervous system related and have offered gabapentin or lyrica. Those medicines are worse than the tremors so I live with the uncontrollable shaking.

REPLY
2 replies
nancyoinnc | @nancyoinnc | Oct 13, 2022
In reply to @littlecrown1966 "What medications are you taking? Anything that may raise your serotonin levels, or that combined might..." + (show)
@littlecrown1966

What medications are you taking? Anything that may raise your serotonin levels, or that combined might raise these levels? Here is some info to check into...i am not a doctor....just sounds similar to some episodes i was having as well, and when i went to ER a few times before they discovered my serotonin levels were too high, could have been med induced or other....but here is info on it, and at any rate would make sure if you suspect thyroid issues, or already have an endocrine doctor to let them know....
https://www.mayoclinic.org/diseases-conditions/serotonin-syndrome/symptoms-causes/syc-20354758

Jump to this post

Yes, my first thought was serotonin syndrome too. Beware of OTC supplements(this may not apply to you, I do not know if you take anything OTC or any meds other that thyroid hormone) While some OTC supplements are benign for most people, some can set off a cascade of problems.

REPLY
bpaul | @bpaul | Oct 21, 2022
In reply to @blulilbaby "I used to have the horrid night sweats and heart palpitations too. I take a heart..." + (show)
@blulilbaby

I used to have the horrid night sweats and heart palpitations too. I take a heart regulating med called Metoprolol. I had the tilt table test at Mayo and they said I had POTS (Postural Orthostatic Tachychardia Syndrome) meaning when I adjust posturally my heart rate changes. I had the dizziness to the point where I would actually have to catch myself to keep from falling as well. Ever since I have been on the med I haven't had any issues at all. My night sweats stopped when I got on a good dose of Thyroid medication. It is a good sign for me to pay attention to because if it starts again I know my meds are off and to go see my Endocrinologist to check my levels. A random doctor that wasn't even mine stopped to look at my chart one day and asked if I had been tested for Graves. That sent me to an Endocrinologist (The only specialty I had not seen) and he ran the specific blood tests for Graves, Addisons, and Hashimoto's. I swear when I went back for the results and he said I 100% had Hashimoto's I stood up right there and did the dance of joy that I had a disease! Because it turns out I wasn't imagining things or faking symptoms. It finally had a name and if it had a name I could do something about it before it killed me. A regular thyroid level will not show you whether you have it or not. You have to test specifically for those three things. SO see an Endocrinologist and when you make the appt ask if they specialize in Graves or Hashimoto's. It makes a difference. If you have it you will start on meds that will take a little adjusting to get a good level to control everything that is happening but I swear there is an end game!.I can go outside in the daytime without dying in minutes from heat intolerance. I can work a part time job now instead of being home bound. I sleep an entire night through without waking up. I haven't fallen or had a significant dizzy spell in almost 2 years. My heart palpitations have stopped completely.Removing the thyroid is NOT for everyone. If you have HD it can be managed with medication. Mine had just been undiagnosed and active for 7 1/2 years so there was just too much damage to almost everything inside my body for me to be able to manage it with just meds. I wish you luck! I don't hope that you have HD but I hope that you have HD, (You understand that. ) Most people do not know this but your Thyroid LITERALLY tells every cell in your body what to do so when it is broken everything goes haywire in your body. If it gets to the point of removal I can point you to the best doctor at Mayo in Jacksonville, Florida, to do it. He has done more than 2500 Thyroidectomy's and is the chair of the department. I went to the top guy and I am so glad that I did. It could not have turned out to have a better result for me. First step you have to go see an Endocrinologist to have the blood test. The results can literally change your life.

Jump to this post

Question: if as you say the thyroid literally tells every cell in your body what to do, how can it be okay to remove your thyroid? Are drugs alone able to compensate?

REPLY
khali | @khali | Oct 22, 2022
In reply to @krcc "My hypothyroidism is well controlled and I have internal tremors daily. My doctors do not believe..." + (show)
@krcc

My hypothyroidism is well controlled and I have internal tremors daily. My doctors do not believe that is the cause but do not have an alternative or definitive answer. They do think it is nervous system related and have offered gabapentin or lyrica. Those medicines are worse than the tremors so I live with the uncontrollable shaking.

Jump to this post

yes, i have the same but no luck on what it is, been to 11 endos, 3 neurologist, internists etc, no luck whatsoever

REPLY
1 reply
gillysmom | @gillysmom | Oct 23, 2022
In reply to @khali "yes, i have the same but no luck on what it is, been to 11 endos,..." + (show)
@khali

yes, i have the same but no luck on what it is, been to 11 endos, 3 neurologist, internists etc, no luck whatsoever

Jump to this post

Do you ever travel away from home? if so, do the tremors or vibrations ever stop?

REPLY
1 reply
khali | @khali | Oct 24, 2022
In reply to @gillysmom "Do you ever travel away from home? if so, do the tremors or vibrations ever stop?" + (show)
@gillysmom

Do you ever travel away from home? if so, do the tremors or vibrations ever stop?

Jump to this post

No, no matter if i travel or not i always get the vibrations and headaches and sometimes my BP gets high

REPLY
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