Anyone out there diagnosed with Pudendal Neuralgia?

Posted by LeighO57 @leigho55, Jun 5, 2018

I have not been on connect for quite a while since I have only recently received a diagnosis (one of many probably to come) I am looking for someone/anyone who has the pain from a surgical injury of sorts to this nerve to talk to. Is there anyone out there with Pudendal Neuralgia on connect? Thank you!

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mikaylar | @mikaylar | Oct 8, 2022

I believe that. It took them years to even diagnose me. The nerve blocks just made it more irritated. Somehow try to get an anti-seizure med and see how it works. Find a good neurologist who will prescribe it. I will praying for you.
Mikayla

willows | @willows | Oct 8, 2022

In reply to @robert88 "Do you have many side effects with Lyrica, such as insomnia or constipation ? Does it..." + (show)

No I have not experienced any side effects with Lyrica. To my knowledge my thyroid is ok but I will be having blood tests in a couple of weeks so I will see.

jraslevin | @jraslevin | Oct 9, 2022

I have pudendal neuralgia along with lots of other conditions. But I think it’s this condition that has changed my life the most.

4846 | @4846 | Oct 9, 2022

Does this pain seem likd it’s a uti

willows | @willows | Oct 9, 2022

In reply to @4846 "Does this pain seem likd it’s a uti" + (show)

I my experience it can sometimes seem like a uti.

4846 | @4846 | Oct 9, 2022

Harc to know isn’t

jraslevin | @jraslevin | Oct 10, 2022

In reply to @4846 "Does this pain seem likd it’s a uti" + (show)

Not at all for me. Basically anything that can burn or hurt does, I sit on a pillow with ice packs inside the pillowcase. Everywhere I go I have to bring my pillow & a cooler for the ice packs. And still I can’t sit more than 3-4 hrs in a day.

4846 | @4846 | Oct 10, 2022

In reply to @jraslevin "Not at all for me. Basically anything that can burn or hurt does, I sit on..." + (show)

Thank you. I really don’t think this is pudendal neuralgia. Think it’s more prolapse. Urogynoncologist say pn. But it’s my rectum vaginal pressure!!!! so bad !!