Anyone out there diagnosed with Pudendal Neuralgia?

Posted by LeighO57 @leigho55, Jun 5, 2018

I have not been on connect for quite a while since I have only recently received a diagnosis (one of many probably to come) I am looking for someone/anyone who has the pain from a surgical injury of sorts to this nerve to talk to. Is there anyone out there with Pudendal Neuralgia on connect? Thank you!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

jraslevin | @jraslevin | Oct 11, 2022

In reply to @mikaylar "I sat on a donut for 14 years. I am so sorry for you. Like I..." + (show)

I’m on the max dose of neurontin & can’t take lyrica. 🤷🏼‍♀️

mikaylar | @mikaylar | Oct 11, 2022

I took Topamax for an unrelated issue and within 2 weeks I got relief. Anti-seizure drugs are nasty, but it was worth the 2 weeks of taking it. See a good pelvic PT. Where do you live?

mgeasland | @mgeasland | Oct 16, 2022

In reply to @dmburns54 "Hello, I crushed the left branch of the Pudendal N. in 1995. It took 3 years..." + (show)

Thank you very much, I read about Dr Antolak. I believe now he has a private practice. I'm in Florida and traveling to Minnesota for me will be very difficult. Also, if I do, I guess I will have to make leaving arrangements for a few months to get treated by Dr. Antolak. you mentioned you got some relief, so not full recovery???

mgeasland | @mgeasland | Oct 16, 2022

In reply to @menville "I have had multiple nerves with neuralgia and opted out of surgeries due to other health..." + (show)

Hi, my next step is the nerve-block injections with steroids. You mentioned you got some relief from these injections. Can you be more specific to what was the best case scenario (relief lasted for weeks, months). And also you mentioned in some instanced was no relief at all. Any idea why?
Thank you

4846 | @4846 | Oct 17, 2022

In reply to @mgeasland "Thank you very much, I read about Dr Antolak. I believe now he has a private..." + (show)

Following

mikaylar | @mikaylar | Oct 18, 2022

I had this monster for 14 years and sat on a donut. The only thing that worked was anti-seizure medicine that I was take off label for an unrelated problem. It was Topamax and worked in less than 2 weeks. Nerve blocks only made it worse with irritation. As about anti-seizure medicine.
Mikayla

klm4747 | @klm4747 | Apr 4 4:52am

Does anyone have Pudendal Neuralgia?
I’m looking for a doctor at the Mayo Clinic that deals with this.

Colleen Young, Connect Director | @colleenyoung | Apr 4 8:48pm

In reply to @klm4747 "Does anyone have Pudendal Neuralgia? I’m looking for a doctor at the Mayo Clinic that deals..." + (show)

Hi @klm4747, I moved your question to this existing discussion about pudendal neuralgia so you can easily connect with others.
– Anyone out there diagnosed with Pudendal Neuralgia?: https://connect.mayoclinic.org/discussion/anyone-out-there-diagnosed-with-pudendal-neuralgia/

You may appreciate this video with Isabel Green, M.D., and Jenna Miller, APRN, D.N.P., C.N.P., as they talk about the pelvic pain clinic at Mayo Clinic in Rochester, Minnesota.