Hello, I haven't logged in for awhile. A lot has happened, but with no positive results.
I did get the MRA blood flow scan, which came back "very good", along with Corotid artery scan, which was the same. Afterwards I flew to Mexico for a Lumbar Puncture. They piled on a list of tests to search for any inflammation signs, autoimmune signs, and infection signs.
They also ordered more blood work, which came back clear.

The Spinal tap results came in showing no signs of MS, or myelin sheath in the sample, so they have pretty much written off MS.

One thing that finally did come back wrong, was my Interleukin-6 (IL-6) in the spinal fluid. It is two times the level it is supposed to be. The IL-6 I was told is "a broad indicator that something is either infected or inflamed". But when all the other tests from the lumbar puncture came back clear, they wrote it off as "something that the body just releases for no reason sometimes".

I went to another Neurologist and he seemed interested in the IL-6 being high, and ordered blood work that could track down areas that would find why someone's IL-6 was off. All blood work is, of course again, normal.

In the start of November, I caught covid. The symptoms were typical and went away after a couple weeks, but I noticed that my main problem (vision and fatigue) had taken a serious drop again. I have noticed that, while my problem has continued to deteriorate steadily through the year, each time I get sick it caused a nosedive. When I caught food poisoning in Mexico in January it did the same thing, took a sharp dive, and never recovered. Now Covid has done the same thing.

At this point I can't really drive anymore, as my peripheral is pretty much gone unless I really try to focus on seeing it. My focal point is like a pin dot. The fatigue varies. Some days I feel like going out for half the day and doing something around my property. Some days I sleep or lay around all day because I am either tired or my vision is to irritating to try to focus on anything. At this point I feel like I am just rotting away until I finally die someday.

I did get my Neuro-Ophthalmologist to send a referral to a very highly recommended Neuro-Ophthalmologist at UT-Southwest. This guy has studied Neuro-Ophthalmology for decades, has done studies and research at Mayo clinic, and does some kind of work with University lectures about neurology stuff. He also still runs his practice with Neuro-Ophthalmology.

I am hoping he will have some new ideas. They said they will review the referrals and decide whether to accept or reject it. So at the moment it is just more waiting, and hoping they will consider it.