Anyone else gone gluten and dairy free to help improve symptoms

Posted by eileenb1022 @eileenb1022, Sep 30, 2022

Hi,
It has been suggested to me and i have talked to people who havegone gluten and dairy free that has helped their symptoms. justlooking for anyone here who has and interested if it has made a difference? if it has could you share some menu's or give me some ideas? and how long did it take for you to see improvement? i have some general ideas on what to buy but looking for more before i head out. its been suggested to me because i have hypothyroidism which until recently has been out of whack, hyperplasia with possibilityof autoimmune gastritis, possible sjorgens syndrome and maybe lichen sclorus. im waiting on specialists to confirm but i have to wait for appointments which is so hard. its kind of like starting fresh. in 15 months of being sick i have gotten little help so im traveling 3 hours to boston where i can get better help its just hard waiting for these appointments.i am seeing a naturpath dr in a few weeks never been to one so not sure what to expect but i think he is better than who previously i have seen. sorry to ramble just hoping someone here relates tome and can help me out. thank you!

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@peggyjean

Right there with you….. plus I have gastroparesis & my Hubby is diabetic…. I found a lot of recipes on Facebook & Pinterest….. it’s helped a lot! I’m so limited to being lactose intolerant per Mayo Clinic not being able to eat much on my gastroparesis diet also….Prayers For Solutions!!!!

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My hubby is diebetic and has heart problems. I was tested for gastroparisis I was sure I had it I don't. A endoscope showed linear endocrine cell hyperplasia with possibly of autoimmune gastritis. Today is a bad day nausea. Stomach burning. Also no gallbladder as of last Jan and a bunch of autoimmune issues. Everything snowballed after my gallbladder surgery

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@eileenb1022

I just applied my status right now is pending hope I get in cause all my problems since has been awful. I am on Facebook I don't know if I'm allowed to put my full Facebook name here though

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I'm in the group. Can you send me a private message so I can have your name for Facebook?

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@susan159

I have had chronic, life altering diarrhea all my adult life. I tried all sorts of things but never tried cutting out gluten because A) I always heard that it was a crock unless you have celiac disease and, B) I thought it would be too hard to do. I cut way back on carbs a few years ago when my husband was diagnoses with Type II Diabetes and my digestive track improved greatly. So I thought my problems were related to eating sugars/carbs (I didn't think about how I was also greatly reducing gluten at that time, duh!) But when I got my cancer diagnosis had lost 20 lbs and they wanted me to gain weight. So I threw out my low carb diet and ate carbs with abandon for a few days and felt awful! All the old out of control diarrhea problems and gut pain came roaring back. I then realized that eating more carbs meant I had also gone on a gluten bender. I cut out all gluten and within a week or two I had a truely normal digestive system for the 1st time in over 40 years! I also have RA which has been in remission since around the same time that I lowered my carb intake. Don't know for sure that it's related, but I don't want to find out. I have a cancer dietician who insists that "gluten free" is just a fad. She claims there is no real test for it. On the other hand I have friends who are gluten free who insist they have been tested. One of my friends' Drs believes that NOBODY should eat gluten. It turns out that cutting out gluten isn't as hard as you might think. Gluten free or gluten friendly stuff is pretty easy to find. I don't know if this is the proper place to name brands/stores etc...But I have found a ton of good alternatives. My gluten free friends were the best resource. I'd say give cutting out gluten a try for a couple of weeks. The difference was so dramatic for me that I don't feel I need a test. Good Luck! I hope you get an answer.

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Thank you and your post did help. I'm glad cutting gluten out has helped you. I just started yesterday. I'm hoping it helps me. It surely couldn't hurt. I wasn't eating well at all prior to getting sick. I think this is a way of life I need to do. I also see a naturopath dr next week and I'm curious what he will say and how he will help me. Good luck to you too. Best wishes ❤

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@eileenb1022

Thank you and your post did help. I'm glad cutting gluten out has helped you. I just started yesterday. I'm hoping it helps me. It surely couldn't hurt. I wasn't eating well at all prior to getting sick. I think this is a way of life I need to do. I also see a naturopath dr next week and I'm curious what he will say and how he will help me. Good luck to you too. Best wishes ❤

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I'm glad it helped. I really hope it works for you like it did for me. There is a FB group: traderjoesglutenfree that has really brought some good tasting gluten free options to my attention. I'm also OK with "gluten friendly" because Celiac isn't my problem. A lot of restaurants have gluten friendly options which just means the food does not contain gluten but it may have come into contact with gluten because it was cooked in the same oven/kitchen as things containing gluten. I especially see it with pizza. ie They may make a gluten free crust but they bake it in the same oven with the tradition dough pizzas. Good health to you!!!

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@eileenb1022

Thank you. I'm hoping no gluten and dairy will help. I belong to stuff that works too. Do you know if there is a group for people who had a adverse reaction to the Moderna vaccine?

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I jusr joined Facebook's Neuro V Long-Haulers and Neuro V-6 + Long-Haulers. The first group is international with thousands of any Covid 19 vax ijnured members. The second group is for people still suffering more than 6 months after any vaccination.

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@bebold

Also be aware, there are fillers in our meds. And each month the manufacturer we are given can change which is why mail away pharms etc change the pill every month. Whatever is cheapest. But gluten and dairy powder is used as fillers in most meds. If you are allergic to the filler used, you won't absorb the meds correctly. And esp with generic thyroid. I also have hashimotos and only the brand name synthroid will keep me regulated. Generic my TSH once went up to 105! Yes, 105 (ended up with carpal tunnel surgery because of it. My insurance insisted I use Generic for 6 months. Nearly killed me. Tsh of 105 will have you in the ER pretty sick.

Our thyroids are so sensitive. Even pharmacies are not allowed to give you generic thyroid if you doctor orders brand name. Brand name synthroid is not even special approval on my current part D. Same with anti seizure meds.

But regardless, you can feel like you are on a gluten free diet and find out that the months your meds don't work, they contain gluten and are not digestable for you. And if it changes every month, hard to say meds aren't working when you are allergic to the ingredients. I have a friend who told me +blank+ drug never worked for her. I know it does if you get the right brand. Most are from India and there is very little FDA oversight. Research generics online. You will find many who get headaches like you do from a drug but when they changed to a different manufacturing, the headaches stopped. So it's NOT maybe that you can't take the meds, you need a filler you aren't allergic too.

Brand name synthroid stopped me from having my thyroid removed. My thyroid doc was the first one to tell me he thought I was allergic to the filler and it would be all fixed if I only used brand name. Many who work with thyroids know this, but some don't believe it's true.
There is a well researched book on amazon about the real deal with generic drugs. Very little supervision. Some manu plants in India don't even have one employee with a high school diploma and have no sterile rooms but lots of mice.
Look it up. Esp Sun Manufacturer. And most of the ones, the cheapest, probably on your bottle. You can have your doctor put the name of the manufacturer you need to get on the script. Like generic lamictal. There is only one that doesn't cause seizures to start up again which mean better control of bipolar too.

All meds are not created equal. Best of luck.
Check your meds for allergic items. Find a good manufacturer and stick with it. And even that, if it looks different next month, recheck the filler. Esp if it stops working. If your thyroid goes off the charts even tho "nothing changed. " The generic filler may very well have changed.

What I am saying is true. So some research. These places are closed down and reopened all the time. Many times with nothing fixed except drug shortages makes the FDA reopen filty manufacturing plants. Esp if tramadol etc get short. And not all tramedol works the same. I could say tons as I've done a lot of research and only use meds I've checked out. And then found a drug store carrying that brand. Ever wonder why some blood pressure meds work one month and not the next and the next thing you know you are on 4 blood pressure meds.

Sorry I went long. This is really important stuff.

So this is why I will never do mail away pharmacies. All white pills that are changed every month as they get the cheapest ones they can get that month. Or three months supply. I would rather shop local and know the manufacturer name.

I just got 10 vials of a med I inject myself (anti-inflammatory.) Within 20 minutes I am usually pain free for a day. Last time, nothing. Like it was water. I looked it up and it was a known bad manufacturer and NOT the same one I had last time. I found a pharmacy who could get the same as last time and got it refilled when I could 5 days later. I really want to take these vials to a lab and see if it's just water. Which is exactly how this was exposed. A cancer doctor had pts dying who shouldn't have been. He took their drug infusion drug to a lab and it WAS water. True story. Some of our pills are just pure corn starch. Sorry to go off on y'all it's just so vital to not decide a drug doesn't work when it might not be the drug which could really help you if it was a better manufacturer. Very few generics are made in the US, but some are. And Italy and israel can be a better choice than India or China for generic meds.

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i dont do mail order ever. i am on a lot of different meds for a variety of issues. i have always gotten generic. i know for pharmacies for insurance wise they always fill with generic unless otherwise said by the doctor. and i know name brands are very expensive. i have no proof generic is harming me and with the variety of meds i take monthly generic is what i can afford. of course if one of them was causing me harm i would look into it. few months ago the one time mt thyroid went out of whack in 20 years my tsh only went up to 7.7 but im sorry of your experience. i have a lot on my plate, lot of specialists, lot of medical issues so i cant really take on more than i already are dealing with. good luck.

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@gillysmom

I jusr joined Facebook's Neuro V Long-Haulers and Neuro V-6 + Long-Haulers. The first group is international with thousands of any Covid 19 vax ijnured members. The second group is for people still suffering more than 6 months after any vaccination.

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oh ok i will look into the second one thank you

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All that you have can be healed or controlled through the gut. If you eat a typical American diet then you will be full of inflammation and irritations and particles will be getting thru into your bloodstream that shouldn’t.
If you change to AIP eating and don’t do it half heartedly, you can improve your health immensely. I had Hashimotos, hormone snd adrenal exhaustion, my muscles were being eaten away and I was in bed crying most days.
Changed to aip and within two days thought hmm maybe I feel a bit better and by two weeks I was a different person.
Basically it’s meat and fish and chicken with veges. No dairy no nuts no tomatoes, potatoes or peppers. Definitely no wheat or gluten. I kept eggs in my diet.
Breakfast: chopped sweet potato with any other vege and spinach with leftover chicken stir fried in good olive oil, salted with good mineralised salt, black tea.
Lunch: beef or chicken broth with veges and meat. Rice sourdough bread.
Dinner: pancakes made with tapioca, cassava flour, with banana mashed., with maple syrup and coconut cream just as examples.
Stay away from gluten free made products they are full of extras

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@shirleynz

All that you have can be healed or controlled through the gut. If you eat a typical American diet then you will be full of inflammation and irritations and particles will be getting thru into your bloodstream that shouldn’t.
If you change to AIP eating and don’t do it half heartedly, you can improve your health immensely. I had Hashimotos, hormone snd adrenal exhaustion, my muscles were being eaten away and I was in bed crying most days.
Changed to aip and within two days thought hmm maybe I feel a bit better and by two weeks I was a different person.
Basically it’s meat and fish and chicken with veges. No dairy no nuts no tomatoes, potatoes or peppers. Definitely no wheat or gluten. I kept eggs in my diet.
Breakfast: chopped sweet potato with any other vege and spinach with leftover chicken stir fried in good olive oil, salted with good mineralised salt, black tea.
Lunch: beef or chicken broth with veges and meat. Rice sourdough bread.
Dinner: pancakes made with tapioca, cassava flour, with banana mashed., with maple syrup and coconut cream just as examples.
Stay away from gluten free made products they are full of extras

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And I used eggs as a go to.

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I am for the most part dairy free, i should also try gluten free, i also have hypothyroidism as i have had my thyroid removed, but have had issues with inflamatory digestive system as well as well as other areas of chronic inflamation including my skin....i have had major improvements just with the dairy free, and am hoping to learn more on how to go gluten free....

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