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Chronic Subjective Dizziness-CSD

Ear, Nose & Throat (ENT) | Last Active: Jan 28, 2023 | Replies (72)

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@purvissp

I have had this dizziness/anxiety for over 6 years now. Been all over the country to major hospitals with no luck. Went to Mayo (Dr Stabb) in 2014 and was diagnosed with CDS. I did all the exercises and no help. I kept in contact with him and he suggested trying several SSRI and NSRI's to get relief. I did try 7-8 of the drugs he recommended with not help. He then suggested seeing a psychologist for CBT. I have been seing the psychologist for almost 2 years now and really the dizziness and anxiety are still not good.

Benzodiazepine Warning -----

During the course of trying to find help in about 2011 my family doctor prescibed clonazepam 0.5mg/day. It did not help the dizziness much, but did help the anxiety. But the bad part is after taking for a while you build up a tolerance and require a larger dose. My family doctor kept raising my dose until early 2014 I was on 8mg/day. At that dose I pretty much slept all the time. In March 2015 I had some kind of seizure, fell out of bed in the night and found I could not stand up. My wife took me to the ER and they admitted me to the hospital. The doctors at the hospital were astonished the my doctor had gotten me on an extremely high dose and told me I must start tapering of the clonazepam. I immediately changed family doctors and started tapering off the drug. These drugs have to tapered very slowly to avoid seizures of terrible withdrawal symptoms. I have now been tapering 1 year now and down to .5mg/day, but has been extremely hard and the withdrawal symptoms along with the dizziness is awful and I have at least 6 more months to taper off this terrible drug.

I am not sure how the CDS will be once I taper of the clonazepam, but I guess I will just have to deal with that when I am done tapering.

Please be careful of all benzodazepines. They are good for some things, but should only be used in low doses for short periods of time. Google benzodiazepines and read the warnings.

Hope some day there will be some help or relief from CDS.

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Replies to "I have had this dizziness/anxiety for over 6 years now. Been all over the country to..."

I have had this problem for some time. I have been through many<br />
unsuccessful therapies ect. Nothing helps, doctors tell me it's anxiety,<br />
it's not, I gave up. I suffer silently. Slowly going mad<br />